Quinn Karen, Murray Craig D, Malone Caroline
Division of Health Research, Lancaster University , Lancaster , United Kingdom and.
Disabil Rehabil. 2014;36(20):1670-8. doi: 10.3109/09638288.2013.866699. Epub 2013 Dec 12.
Stroke is a major cause of disability worldwide and affects a significant number of working age adults each year. The consequences of stroke impact upon both young stroke survivors and their partners and this study aimed to qualitatively explore their joint experience.
Eight joint semi-structured interviews were conducted and analysed using IPA.
Three themes were identified: (1) "How's this happened?"--Making sense of the stroke; (2) "Is this what life is going to be like now?"--From partners to carer and "cared for"; (3) "I lost being a man. I was a little boy, being looked after all the time"--From partners to parent and child.
Stroke at a young age can significantly disrupt couples' life biographies. The findings highlight the need for both partners to adapt to their reciprocal relationship role changes and the importance of addressing the couple as a focus for intervention. Implications for Rehabilitation Stroke at a young age is an abrupt event that impacts upon both partners in a relationship. The findings add insight to some of the issues faced by young stroke survivors and their partners, which can now be considered in tailoring treatment to this specific cohort within the context of services predominated by older adults. The findings highlight significant relationship role changes experienced within couples, which suggests a need for rehabilitation interventions to focus on the adjustment of both partners.
中风是全球残疾的主要原因,每年影响大量工作年龄的成年人。中风的后果对年轻的中风幸存者及其伴侣都有影响,本研究旨在定性探索他们的共同经历。
进行了八次联合半结构化访谈,并采用解释现象学分析法进行分析。
确定了三个主题:(1)“这是怎么发生的?”——理解中风;(2)“现在生活就是这样了吗?”——从伴侣到照顾者和“被照顾者”;(3)“我不再是个男人了。我成了一个小男孩,一直被照顾着”——从伴侣到父母与孩子。
年轻时中风会严重扰乱夫妻的生活历程。研究结果凸显了双方都需要适应彼此关系角色的变化,以及将夫妻作为干预重点的重要性。对康复的启示年轻时中风是一个突然事件,会影响到关系中的双方。这些发现为年轻中风幸存者及其伴侣面临的一些问题提供了见解,现在可以在以老年人为主的服务背景下,针对这一特定群体量身定制治疗方案时加以考虑。研究结果凸显了夫妻关系中经历的重大角色变化,这表明康复干预需要关注双方的调整。