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儿子照顾患有痴呆症父母的经历。

The experience of sons caring for a parent with dementia.

作者信息

McDonnell Eilis, Ryan Assumpta A

机构信息

Sacred Heart Hospital, Republic of Ireland.

University of Ulster, Northern Ireland

出版信息

Dementia (London). 2014 Nov;13(6):788-802. doi: 10.1177/1471301213485374. Epub 2013 Apr 16.

DOI:10.1177/1471301213485374
PMID:24339083
Abstract

This study explored the experiences of sons caring for a parent with dementia. Individual, semi-structured interviews were conducted with a purposeful sample of sons (n = 13) in a rural part of Ireland. Interviews were audiotaped, transcribed verbatim and analysed for common themes. The key themes that emerged were 'the parental bond', 'a binding role', 'coordinating care and support' and a 'getting on with it' approach to care. The study highlighted the commitment of sons to their caregiving role and the strong sense of duty that motivated them to provide care. The findings suggested that while many aspects of the caregiving experience such as lack of information and support are gender neutral, there are differences in the caregiving experiences of men and women in how they view their relationship with their parent and in the management of their caregiving role that merit further investigation.

摘要

本研究探讨了儿子照料患痴呆症父母的经历。对爱尔兰农村地区有目的抽取的13名儿子进行了个体半结构式访谈。访谈进行了录音,逐字转录,并分析了共同主题。出现的关键主题有“亲子纽带”“约束性角色”“协调照料与支持”以及照料中的“坚持下去”态度。该研究强调了儿子对其照料角色的投入以及促使他们提供照料的强烈责任感。研究结果表明,虽然照料经历的许多方面,如缺乏信息和支持是不分性别的,但男女在照料经历中,在如何看待与父母的关系以及照料角色的管理方面存在差异,值得进一步研究。

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