Hosseini Seyed Javad, Ramezani Monir, Ashrafzadeh Farah, Jamali Jamshid
Department of Pediatrics, School of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran.
Nursing and Midwifery Care Research Center, Mashhad University of Medical Sciences, Mashhad, Iran.
Int J Community Based Nurs Midwifery. 2025 Jan 1;13(1):77-89. doi: 10.30476/ijcbnm.2024.102470.2490. eCollection 2025 Jan.
Caring a child with intellectual and developmental disabilities (IDDs) presents numerous challenges that can impact the mothers' caring motivation. This study aimed to explore the caring motivation barriers among mothers of children with IDDs.
This qualitative content analysis study was conducted from July 2023 to March 2024. Twenty-six mothers of children with IDDs were purposefully selected to participate in face-to-face semi-structured interviews. Data collection continued until saturation was achieved. Data analysis was conducted using Mayring's inductive approach within MAXQDA version 20. We utilized Lincoln and Guba's criteria for ensuring rigor.
The mean ages of the mothers and children were 40.34±7.44 years and 9.38±4.33 years, respectively. The analysis identified several main categories and 15 subcategories: (I) Mother's insufficient readiness: low level of competency, decreased maternal strength with child's advancing age, caregiving fatigue, complex health problems, and incompatibility with the child's disability; (II) Perceived lack of support for the mother in caregiving: insufficient family support, inadequate social support, deficient healthcare provider support, lack of spiritual support, and insufficient financial support; and (III) Encountering caring complexity: disappointment with the child's recovery, challenges in providing optimal rehabilitation, multiple physical problems in the child, unintentional behaviors in the child, and priority of personal goals over the care.
The motivation of mothers to care for children with IDDs is influenced by a range of challenges. Future research should take these barriers into account to enhance maternal caregiving motivation. To modify the identified obstacles, a comprehensive plan of actions should be devised.
照顾有智力和发育障碍（IDD）的儿童面临诸多挑战，这些挑战可能会影响母亲的照顾动机。本研究旨在探讨IDD患儿母亲的照顾动机障碍。
本定性内容分析研究于2023年7月至2024年3月进行。目的选取26位IDD患儿的母亲参与面对面半结构化访谈。持续收集数据直至达到饱和。使用Mayring的归纳法在MAXQDA 20版本中进行数据分析。我们采用林肯和古巴的标准来确保严谨性。
母亲和孩子的平均年龄分别为40.34±7.44岁和9.38±4.33岁。分析确定了几个主要类别和15个子类别：（I）母亲准备不足：能力水平低、随着孩子年龄增长母亲体力下降、照顾疲劳、复杂的健康问题以及与孩子残疾不匹配；（II）母亲在照顾中感到缺乏支持：家庭支持不足、社会支持不足、医疗保健提供者支持不足、精神支持缺乏以及经济支持不足；（III）面临照顾复杂性：对孩子康复的失望、提供最佳康复的挑战、孩子的多种身体问题、孩子的无意行为以及个人目标优先于照顾。
母亲照顾IDD患儿的动机受到一系列挑战的影响。未来的研究应考虑这些障碍，以增强母亲的照顾动机。为了克服已确定的障碍，应制定全面的行动计划。
