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“你必须留意这是谁的故事”:与痴呆症患者及其家庭护理人员开展人生故事工作的挑战

'You have to be mindful of whose story it is': the challenges of undertaking life story work with people with dementia and their family carers.

作者信息

McKeown Jane, Ryan Tony, Ingleton Christine, Clarke Amanda

机构信息

Sheffield Health and Social Care NHS FT, Sheffield, UK

School of Nursing and Midwifery, University of Sheffield, Sheffield, UK.

出版信息

Dementia (London). 2015 Mar;14(2):238-56. doi: 10.1177/1471301213495864. Epub 2013 Jul 26.

DOI:10.1177/1471301213495864
PMID:24339102
Abstract

INTRODUCTION

Life story work is increasingly being used with people with dementia; this work offers a critical appraisal of some challenges that may be faced in practice.

DESIGN AND METHODS

An in-depth case study analysis was undertaken to understand the experiences of people with dementia, family carers and care staff in using life story work in an NHS Mental Health and Social Care Trust. Data collection included semi-structured interviews, observation, conversations and field notes.

FINDINGS

Private memories were sometimes recalled by the person with dementia that were not for inclusion in any written product; enabling the person with dementia to tell their own life story could be a challenge; quality of the life story books was variable and; at times, life story work may be overused with the person with dementia.

CONCLUSION

Services should not be deterred from undertaking life story work with people with dementia, but there is a need to adopt a planned approach to its implementation that includes facilitation, education and supervision.

摘要

引言

生活故事工作越来越多地应用于痴呆症患者;这项工作对实践中可能面临的一些挑战进行了批判性评估。

设计与方法

进行了深入的案例研究分析,以了解国民保健服务(NHS)心理健康与社会关怀信托机构中痴呆症患者、家庭护理人员和护理人员在使用生活故事工作方面的经历。数据收集包括半结构化访谈、观察、对话和实地记录。

研究结果

痴呆症患者有时会回忆起一些私人记忆,这些记忆不适合纳入任何书面作品;让痴呆症患者讲述自己的生活故事可能是一项挑战;生活故事书的质量参差不齐;有时,生活故事工作可能会在痴呆症患者身上被过度使用。

结论

不应阻止服务机构对痴呆症患者开展生活故事工作,但需要采用一种有计划的实施方法,包括提供便利、教育和监督。

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