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脊髓损伤患者的个性化与健康相关生活质量

Individualised and health-related quality of life of persons with spinal cord injury.

作者信息

Tramonti F, Gerini A, Stampacchia G

机构信息

Clinical Psychology Unit, Department of Neurosciences, Azienda Ospedaliero-Universitaria Pisana, Pisa, Italy.

Centre for Spinal Cord Injuries, Department of Neurosciences, Azienda Ospedaliero-Universitaria Pisana, Pisa, Italy.

出版信息

Spinal Cord. 2014 Mar;52(3):231-5. doi: 10.1038/sc.2013.156. Epub 2013 Dec 17.

Abstract

STUDY DESIGN

Cross sectional.

OBJECTIVES

To examine associations among functional status, health-related and individualised quality of life (QoL) and coping style in subjects with spinal cord injury (SCI).

SETTING

Italy.

METHODS

Forty subjects attending our hospital-based rehabilitation centre for SCI were administered the Spinal Cord Independence Measure-version III (SCIM-III), the Short Form-36 (SF-36), the Schedule for the Evaluation of Individual QoL-Direct Weighting (SEIQoL-DW) and the Coping Inventory for Stressful Situation (CISS) to assess functional status, health-related QoL, individualised QoL and coping strategies, respectively.

RESULTS

The SCIM-III scores were positively correlated (P<0.01) with the physical functioning subscale of the SF-36. The only scale that correlated (P<0.01) with the SEIQoL-DW scores was the SF-36 mental health subscale. Positive correlations among task-oriented or avoidance-oriented coping and specific measures of health-related QoL emerged.

CONCLUSIONS

Data from the present study showed only a few associations among different measures of QoL and suggest that patient-centered evaluations of QoL are not necessarily or strictly related to functional status or health-related QoL. Coping strategies seem to be significantly related to the subjects perceptions of QoL, but mostly in the health-related domains.

摘要

研究设计

横断面研究。

目的

探讨脊髓损伤(SCI)患者的功能状态、健康相关及个体化生活质量(QoL)与应对方式之间的关联。

地点

意大利。

方法

对40名在我院脊髓损伤康复中心接受治疗的患者进行了脊髓独立测量量表第三版(SCIM-III)、简短健康调查问卷(SF-36)、个体生活质量评估量表-直接加权法(SEIQoL-DW)和应激情景应对量表(CISS)的测评,分别以评估功能状态、健康相关生活质量、个体化生活质量及应对策略。

结果

SCIM-III评分与SF-36的身体功能分量表呈正相关(P<0.01)。与SEIQoL-DW评分相关(P<0.01)的唯一量表是SF-36心理健康分量表。任务导向型或回避导向型应对方式与健康相关生活质量的特定测量指标之间存在正相关。

结论

本研究数据表明,不同生活质量测量指标之间仅有少数关联,提示以患者为中心的生活质量评估不一定或严格与功能状态或健康相关生活质量相关。应对策略似乎与患者对生活质量的认知显著相关,但主要体现在健康相关领域。

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