Calzone Kathleen A, Jenkins Jean, Culp Stacey, Bonham Vence L, Badzek Laurie
NIH, National Cancer Institute, Center for Cancer Research, Genetics Branch, 37 Convent Drive, Building 37, Room 2068, MSC 4256, Bethesda, MD 20892, USA.
NIH, National Human Genome Research Institute, Building 31, Room 4B09, 31 Center Drive, MSC 2070, Bethesda, MD 20892, USA.
Per Med. 2013 Sep 1;10(7). doi: 10.2217/pme.13.64.
Genomics has the potential to improve personalized healthcare. Nurses are vital to the utilization of genomics in practice. This study assessed nursing attitudes, receptivity, confidence, competency, knowledge and practice in genomics to inform education efforts.
MATERIALS & METHODS: Cross-sectional study of registered nurses who completed an online Genetic/Genomic Nursing Practice Survey posted on a national nursing organization website.
A total of 619 registered nurses participated. The largest proportion of education level were nurses with a baccalaureate degree (39%). Most (67.5%) considered genomics very important to nursing practice. However, 57% reported their genomic knowledge base to be poor or fair. The mean total knowledge score correct response rate was 75%. Yet 60% incorrectly answered that diabetes and heart disease are caused by a single gene variant. Most (64%) had never heard of the Essential Nursing Competencies and Curricula Guidelines in Genomics. Higher academic education or post licensure genetic education increased family history collection in practice.
Most nurses are inadequately prepared to translate genomic information into personalized healthcare. Targeted genomic education is needed to assure optimal workforce preparation for genomics practice integration.
基因组学有潜力改善个性化医疗保健。护士对于在实践中利用基因组学至关重要。本研究评估了护士在基因组学方面的态度、接受度、信心、能力、知识和实践情况,以为教育工作提供参考。
对在一个全国性护理组织网站上完成在线遗传/基因组护理实践调查的注册护士进行横断面研究。
共有619名注册护士参与。教育水平占比最大的是拥有学士学位的护士(39%)。大多数(67.5%)认为基因组学对护理实践非常重要。然而,57%的人报告其基因组知识库较差或一般。知识得分正确回答率的平均总分是75%。然而,60%的人错误地回答糖尿病和心脏病是由单一基因变异引起的。大多数(64%)从未听说过《基因组学基本护理能力与课程指南》。更高的学术教育或执照后遗传教育增加了实践中家族史的收集。
大多数护士在将基因组信息转化为个性化医疗保健方面准备不足。需要有针对性的基因组学教育,以确保为基因组学实践整合做好最佳的劳动力准备。