Chambers Tod, Ahmad Ayesha, Crow Sheila, Davis Dena S, Dresser Rebecca, Harter Thomas D, Jordan Sara R, Kaposy Chris, Lanoix Monique, Lee K Jane, Scully Jackie Leach, Taylor Katherine A, Watson Katie
Narrat Inq Bioeth. 2013 Spring;3(1):1-3. doi: 10.1353/nib.2013.0001.
This narrative symposium examines the relationship of bioethics practice to personal experiences of illness. A call for stories was developed by Tod Chambers, the symposium editor, and editorial staff and was sent to several commonly used bioethics listservs and posted on the Narrative Inquiry in Bioethics website. The call asked authors to relate a personal story of being ill or caring for a person who is ill, and to describe how this affected how they think about bioethical questions and the practice of medicine. Eighteen individuals were invited to submit full stories based on review of their proposals. Twelve stories are published in this symposium, and six supplemental stories are published online only through Project MUSE. Authors explore themes of vulnerability, suffering, communication, voluntariness, cultural barriers, and flaws in local healthcare systems through stories about their own illnesses or about caring for children, partners, parents and grandparents. Commentary articles by Arthur Frank, Bradley Lewis, and Carol Taylor follow the collection of personal narratives.
本次叙事研讨会探讨了生物伦理实践与个人患病经历之间的关系。研讨会编辑托德·钱伯斯及其编辑团队发出了故事征集令，并将其发送到了几个常用的生物伦理邮件列表中，还发布在了《生物伦理叙事探究》网站上。征集令要求作者讲述自己患病或照顾病人的个人故事，并描述这如何影响他们对生物伦理问题和医学实践的思考。基于对提案的审核，邀请了18人提交完整故事。本研讨会上发表了12个故事，另外6个补充故事仅通过MUSE项目在线发布。作者们通过讲述自己的疾病故事或照顾儿童、伴侣、父母和祖父母的故事，探讨了脆弱性、痛苦、沟通、自愿性、文化障碍以及当地医疗系统缺陷等主题。亚瑟·弗兰克、布拉德利·刘易斯和卡罗尔·泰勒的评论文章紧随个人叙事之后。
