Hudson Shannon M, Newman Susan D, Hester William H, Magwood Gayenell S, Mueller Martina, Laken Marilyn A
College of Nursing Faculty, Medical University of South Carolina College of Nursing , Charleston, SC , USA and.
Issues Compr Pediatr Nurs. 2014 Mar;37(1):61-80. doi: 10.3109/01460862.2013.855844. Epub 2014 Jan 14.
Children with complex chronic conditions (CCC) have greater health care needs and use rates than children in general. Elevated health care use includes more frequent hospital admissions, longer hospital stays, and greater health care expenses. Prior studies have examined population characteristics associated with increased hospital admissions, emergency department (ED) use, and general healthcare use, yet few studies have investigated these events from the parents' or health care providers' point of view. The purpose of this study was to explore parents/caregivers' and health care providers' perceptions of the factors placing infants and young children with CCC at risk for or protecting them against hospital admissions and ED visits. Parents or primary caregivers participated in interviews, and health care providers in pediatric acute care, pediatric primary care, and emergency care participated in focus groups. Interview and focus group data were analyzed using directed content analysis and an ecological risk and protective factors model. The analysis revealed that parents/caregivers and health care providers described risk factors and protective factors on multiple ecological levels surrounding the child with CCC. This article presents these findings, which add to current knowledge of factors influencing hospital admissions and ED visits and may be used to inform interventions addressing high health care utilization in this population. This article concludes with the implications of the findings for future research and nursing practice.
患有复杂慢性病(CCC)的儿童比一般儿童有更大的医疗保健需求和使用率。较高的医疗保健使用包括更频繁的住院、更长的住院时间以及更高的医疗保健费用。先前的研究已经考察了与住院增加、急诊科(ED)就诊以及一般医疗保健使用相关的人群特征,但很少有研究从家长或医疗保健提供者的角度来调查这些情况。本研究的目的是探讨家长/照顾者和医疗保健提供者对使患有CCC的婴幼儿面临住院和ED就诊风险或保护他们避免这些情况的因素的看法。家长或主要照顾者参与了访谈,儿科急性护理、儿科初级护理和急诊护理方面的医疗保健提供者参与了焦点小组讨论。使用定向内容分析和生态风险与保护因素模型对访谈和焦点小组数据进行了分析。分析表明,家长/照顾者和医疗保健提供者描述了在患有CCC的儿童周围多个生态层面上的风险因素和保护因素。本文呈现了这些研究结果,这些结果丰富了当前对影响住院和ED就诊因素的认识,可用于为解决该人群高医疗保健利用率的干预措施提供信息。本文最后阐述了研究结果对未来研究和护理实践的启示。