Palfrey J S, Singer J D, Walker D K, Butler J A
Department of Medicine, Children's Hospital, Boston, MA 02115.
J Pediatr. 1987 Nov;111(5):651-9. doi: 10.1016/s0022-3476(87)80238-x.
In a study of special education programs in five urban school systems, parent interview data for 1726 children revealed how early the children's problems were identified and how the medical system was involved in the diagnosis. Problems included speech impairment, learning disabilities, emotional disturbance, mental retardation, sensory disorders, and physical and health disabilities. Overall, 4.5% of the children's problems were identified at birth, and only 28.7% before the age of 5 years. Variation in age at identification depended on the condition: 1 year for Down syndrome and cerebral palsy versus a 6-year range for mental retardation. Although physicians were most likely to identify the less common, more severe handicaps, they also identified from 15% to 25% of learning disabilities, speech impairments, emotional disorders, hyperactivity, and "other" development problems. The type, severity, and complexity of the condition were significant predictors of physician identification. No racial, socioeconomic, or site biases were associated with whether a physician was first to identify. Age at identification was predicted by the complexity of the problem, the association with other health and developmental concerns, socioeconomic indicators, and whether a physician was involved in the diagnosis. In the absence of clear assumption of responsibility for early identification, much terrain remains uncharted by medical practitioners and the schools. A better systematic sharing of responsibility for the early identification of developmentally disabling conditions is needed.
在一项针对五个城市学校系统特殊教育项目的研究中,对1726名儿童的家长访谈数据揭示了这些儿童的问题是多早被发现的,以及医疗系统是如何参与诊断的。问题包括言语障碍、学习障碍、情绪障碍、智力迟钝、感官障碍以及身体和健康残疾。总体而言,4.5%的儿童问题在出生时被发现,只有28.7%在5岁之前被发现。确诊年龄的差异取决于具体情况:唐氏综合征和脑瘫为1岁,而智力迟钝则为6年的范围。尽管医生最有可能识别出较罕见、较严重的残疾,但他们也识别出了15%至25%的学习障碍、言语障碍、情绪障碍、多动以及“其他”发育问题。病情的类型、严重程度和复杂性是医生识别的重要预测因素。医生是否首先识别与种族、社会经济状况或地点偏见无关。确诊年龄由问题的复杂性、与其他健康和发育问题的关联、社会经济指标以及医生是否参与诊断来预测。在缺乏对早期识别明确责任承担的情况下,医疗从业者和学校仍有许多未知领域。需要更好地系统分担对发育障碍状况早期识别的责任。