Is the early and periodic screening, diagnosis, and treatment program effective with developmentally disabled children?

The effectiveness of the Early and Periodic Screening, Diagnosis, and Treatment Program (EPSDT) in identifying health and developmental problems and facilitating diagnosis, treatment, and follow-up for a sample of Michigan children with moderate and severe developmental disabilities was studied. Three data sets, derived from parent reports and Medicaid records concerning 281 Medicaid-eligible, young developmentally disabled children from nine representative counties in the state were studied. Approximately 56% of these children had used EPSDT, and 44% had not. Findings from the first data base, a parent questionnaire, indicated no differences between the two groups in terms of age at diagnosis, access to routine or specialized health care, or reasons for inability to obtain needed care. The second database, the screening summaries from the EPSDT sites, contained reports on 108 children. Many of the required procedures were not performed on these children. The final data set, the Medicaid claims records, was used to assess whether appropriate medical follow-up occurred in response to the screening encounter. Only 62% of the screenings with a referral had a Medicaid visit within 1 year of screening and only half of the referrals that resulted in a follow-up visit had a diagnosis that confirmed the reason for referral. Recommendations for improving the health and developmental screening of disabled children are presented and the policy implications of these findings are discussed.