Batenburg Anika, Das Enny
VU University Amsterdam, Department of Communication Science, Amsterdam, Netherlands.
J Med Internet Res. 2014 Feb 5;16(2):e28. doi: 10.2196/jmir.2831.
Due to mixed findings in research on the effect of online peer-to-peer support on psychological well-being, there is a need for studies explaining why and when online support communities are beneficial for cancer patients.
Previous studies have typically not taken into account individual coping differences, despite the fact that patients have different strategies to cope with cancer-related emotions. In the current study, it was predicted that the effects of online support group participation would partly depend on patients' ability to cope with thoughts and emotions regarding the illness.
For this study, 184 Dutch breast cancer patients filled out a questionnaire assessing activity within a peer-led online support community, coping with emotions and thoughts regarding the illness (cognitive avoidance, emotional processing, and expression) and psychological well-being (depression, breast cancer-related concerns, and emotional well-being). Of these, 163 patients were visiting an online peer-led support community.
Results showed interactions of the intensity of support group participation and coping style on psychological well-being. Specifically, we found an interaction of online activity and emotional expression on depression (beta=-.17, P=.030), a marginally significant interaction of online activity and emotional expression on emotional well-being (beta=.14, P=.089), and an interaction of online activity and cognitive avoidance on breast cancer-related concerns (beta=.15, P=.027). For patients who actively dealt with their emotions and thoughts, active online support group participation was positively related to psychological well-being. For patients high on avoidance of illness-related thoughts or low on emotional expression, active participation was negatively related to measures of well-being.
The current study revealed the role of individual differences in coping in online support group participation. Results suggest that breast cancer patients' ability to cope with emotions and thoughts regarding the illness influence the relationship between online support group participation and psychological well-being.
由于在线同伴支持对心理健康影响的研究结果不一,因此需要开展研究来解释在线支持社区为何以及何时对癌症患者有益。
尽管患者应对癌症相关情绪有不同策略,但以往研究通常未考虑个体应对差异。在本研究中,预计在线支持小组参与的效果将部分取决于患者应对疾病相关想法和情绪的能力。
在本研究中,184名荷兰乳腺癌患者填写了一份问卷,评估在同伴主导的在线支持社区中的活动、应对疾病相关的情绪和想法(认知回避、情绪处理和表达)以及心理健康(抑郁、乳腺癌相关担忧和情绪健康)。其中,163名患者访问了同伴主导的在线支持社区。
结果显示支持小组参与强度与应对方式在心理健康方面存在交互作用。具体而言,我们发现在线活动与情绪表达在抑郁方面存在交互作用(β = -0.17,P = 0.030),在线活动与情绪表达在情绪健康方面存在边缘显著交互作用(β = 0.14,P = 0.089),在线活动与认知回避在乳腺癌相关担忧方面存在交互作用(β = 0.15,P = 0.027)。对于积极处理自身情绪和想法的患者,积极参与在线支持小组与心理健康呈正相关。对于高度回避疾病相关想法或情绪表达较少的患者,积极参与与幸福感指标呈负相关。
本研究揭示了个体应对差异在在线支持小组参与中的作用。结果表明,乳腺癌患者应对疾病相关情绪和想法的能力会影响在线支持小组参与与心理健康之间的关系。