边缘生活：一项定性研究中伊朗造血干细胞移植受者患者及护士的经历
Life in limbo: experiences of Iranian hematopoietic stem cell transplantation recipient patients and nurses in a qualitative study.
作者信息
Zamanzadeh Vahid, Valizadeh Leila, Sayadi Leila, Taleghani Fariba, Jeddian Alireza
机构信息
PhD, MScN, BScN (Associate professor) Nursing and Midwifery Faculty, Tabriz University of Medical Sciences, Tabriz, Iran.
PhD, MScN, BScN (Assistant Professor) Nursing and Midwifery Faculty, Tabriz University of Medical Sciences, Tabriz, Iran.
出版信息
Int J Hematol Oncol Stem Cell Res. 2013;7(3):25-33.
BACKGROUND
This study explored the state of hematopoietic stem cell transplantation (HSCT) recipient patients and problems experienced by them and nurse about these state and problems, in Iran.
METHODS
Qualitative content analysis was used for analyzing semi-structured interviews with 12 HSCT recipient patients and 18 nurses.
RESULTS
THREE MAIN CATEGORIES DESCRIBED THE HSCT STATE AND PROBLEMS: shadow of death, living with uncertainty, and immersion in problems. Patients treated with risk variety in continuity with probability of death. The patients lived with uncertainty. Consequently these resulted immersion in problems with four sub-categories including: (a) Physical problems, (b) money worries, (c) life disturbances, and (d) emotional strain.
CONCLUSION
HSCT patients live in a state of limbo between life and death with multidimensional problems. Establish centers for supporting and educating of patients and their families, education of health care providers, enhancement of public knowledge about HSCT along with allocating more budgets to take care of these patients can help patients for passing from this limbo.
背景
本研究探讨了伊朗造血干细胞移植（HSCT）受者患者的状况以及他们和护士所经历的关于这些状况和问题的情况。
方法
采用定性内容分析法对12名HSCT受者患者和18名护士进行半结构化访谈。
结果
描述HSCT状况和问题的主要类别有三个：死亡阴影、生活在不确定性中以及陷入问题。患者面临着各种风险，且死亡概率持续存在。患者生活在不确定性之中。结果导致陷入四个子类别问题之中，包括：（a）身体问题，（b）金钱担忧，（c）生活困扰，以及（d）情绪压力。
结论
HSCT患者生活在生死之间的边缘状态，面临多方面问题。建立患者及其家庭的支持和教育中心，对医疗保健提供者进行教育，提高公众对HSCT的认识，并分配更多预算来照顾这些患者，有助于患者走出这种边缘状态。
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