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台湾地区癌症末期病患对居家死亡偏好之决定因素:一项横断面调查研究。

Determinants of preference for home death among terminally ill patients with cancer in Taiwan: a cross-sectional survey study.

机构信息

1MSN, RN, Instructor, Department of Nursing, Kang-Ning Junior College of Medical Care and Management, and Doctoral Candidate, Graduate Institute of Clinical Medical Science at Chang Gung University 2PhD, RN, Assistant Professor, Department of Nursing, Tzu Chi University 3PhD, RN, Department of Nursing, Fu Jen Catholic University 4DNSc, RN, Professor, School of Nursing, Chang Gung University.

出版信息

J Nurs Res. 2014 Mar;22(1):37-44. doi: 10.1097/jnr.0000000000000016.

Abstract

BACKGROUND

Studies worldwide have shown that most patients with cancer prefer to die at home. Few studies have directly explored the determinants of preference for home death in patients with cancer living in Asia, and none has been conducted in Taiwan.

OBJECTIVES

This study was designed to identify determinants of home-death preference among terminally ill patients with cancer in Taiwan.

METHODS

A convenience sample of 2,188 terminally ill patients with cancer from 24 hospitals nationwide was surveyed. This study used multivariate logistic regression analysis to identify the determinants of preference for home death in the realms of patient demographics and disease characteristics, awareness of prognosis, and family support.

RESULTS

Slightly more than half of the participants expressed the preference to die at home (n = 1,114, 54.7%). The adjusted odds of preferring to die at home were greater for participants described by one or more of the following: (1) family members knew the participant's preference for place of death (p < .001), (2) participant knew his or her prognosis (p = .032), (3) participant had greater functional dependency (p < .001), (4) participant was diagnosed with either liver/pancreatic (p = .028) or head/neck (p = .012) cancer, and (5) participant had less than a junior high school education (p < .001).

CONCLUSIONS/IMPLICATIONS FOR PRACTICE: This study supports the argument that most terminally ill patients with cancer in Taiwan prefer to die at home. To achieve patient preferences for home death, healthcare professionals should provide prognostic information and initiate end-of-life care discussions among patients and their family to facilitate family understanding of their ill relative's place-of-death preference. Developing clinical interventions to alleviate physical symptoms and providing hospice homecare services for terminally ill patients with cancer, especially those with lung cancer and greater functional dependency, may facilitate a preference for and actualization of home death.

摘要

背景

全球范围内的研究表明,大多数癌症患者更愿意在家中离世。虽然有一些研究直接探讨了亚洲癌症患者选择在家中离世的决定因素,但在台湾地区进行的相关研究却很少。

目的

本研究旨在确定台湾地区癌症终末期患者选择在家中离世的决定因素。

方法

本研究采用便利抽样法,对来自全国 24 家医院的 2188 名癌症终末期患者进行了调查。本研究采用多变量逻辑回归分析,确定了患者人口统计学和疾病特征、对预后的认知以及家庭支持等领域中对在家中离世偏好的决定因素。

结果

超过一半的参与者表示希望在家中离世(n=1114,54.7%)。调整后的偏好在家中离世的几率对于以下一个或多个特征的参与者更大:(1)家庭成员了解参与者对死亡地点的偏好(p<0.001),(2)参与者了解自己的预后(p=0.032),(3)参与者的功能依赖性更大(p<0.001),(4)参与者患有肝癌/胰腺癌(p=0.028)或头颈部癌症(p=0.012),以及(5)参与者的教育程度低于初中(p<0.001)。

结论/对实践的意义:本研究支持了这样一种观点,即大多数台湾地区的癌症终末期患者更愿意在家中离世。为了实现患者在家中离世的意愿,医疗保健专业人员应向患者及其家属提供预后信息,并启动临终关怀讨论,以促进家庭成员了解其患病亲属的死亡地点偏好。针对癌症终末期患者,特别是那些患有肺癌和功能依赖性更大的患者,开发减轻身体症状的临床干预措施,并提供临终关怀家庭护理服务,可能有助于他们更倾向于并实现在家中离世的愿望。

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