School of Physiotherapy, Royal College of Surgeons in Ireland, Dublin, Ireland.
Discipline of Physiotherapy, School of Medicine, Trinity College, Dublin, Ireland.
Top Stroke Rehabil. 2014 Jan-Feb;21(1):63-74. doi: 10.1310/tsr2101-63.
Family members and caregivers play a significant supporting role in the rehabilitation process after stroke, a role that may increase with the growing trend of providing stroke rehabilitation in the individual's own home after discharge from the hospital.
To explore the impact of family involvement in exercise delivery after stroke from the perspective of the individual with stroke and his or her family member.
A qualitative research design was used in which in-depth semi-structured interviews were carried out with participants who had taken part in an 8-week family-mediated exercise program (FAME). A phenomenological theoretical framework and a grounded theory methodology were used to inform the data analysis.
Fifteen individuals with acute stroke and 15 designated "family" members participated in the study after completion of an 8-week, individually tailored, family-mediated exercise intervention. An overarching concept of patient-centeredness emerged after data analysis, which detailed the extent to which individuals with stroke and their families felt that their rehabilitation was enhanced by the active role of their families. Four key themes that expanded the concept of patient-centeredness were identified: personalized nature of the reported benefits, therapeutic value of the program, family involvement, and caregiver commitment to program.
This research serves to increase our understanding of the role of family members in the rehabilitation process after stroke, particularly in relation to exercise delivery, from the perspective of the individuals with stroke and their family members.
家庭成员和照护者在中风后的康复过程中扮演着重要的支持角色，随着出院后在患者家中提供中风康复治疗的趋势不断增加，这种角色可能会变得更加重要。
从中风患者及其家庭成员的角度探讨家庭在中风后参与运动治疗的影响。
采用定性研究设计，对参与为期 8 周的家庭介导运动计划（FAME）的参与者进行深入的半结构化访谈。采用现象学理论框架和扎根理论方法对数据进行分析。
15 名急性中风患者和 15 名指定的“家属”在完成 8 周个体化定制的家庭介导运动干预后参与了研究。数据分析后出现了一个以患者为中心的总体概念，详细说明了中风患者及其家属感到家庭的积极作用如何增强他们的康复效果。确定了扩展以患者为中心概念的四个关键主题：报告的益处具有个性化特点、该计划具有治疗价值、家庭参与以及照护者对计划的承诺。
这项研究有助于增加我们对中风后家庭成员在康复过程中作用的理解，特别是从中风患者及其家庭成员的角度来看，他们在运动治疗方面的作用。
