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脑卒中患者和非专业教练在家中进行强制性运动疗法的体验:一项定性研究。

Stroke patients' and non-professional coaches' experiences with home-based constraint-induced movement therapy: a qualitative study.

机构信息

1 Department of General Practice/Primary Care, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.

2 Department of Health Sciences, Faculty of Life Sciences, Hamburg University of Applied Sciences, Hamburg, Germany.

出版信息

Clin Rehabil. 2019 Sep;33(9):1527-1539. doi: 10.1177/0269215519848813. Epub 2019 May 20.

DOI:10.1177/0269215519848813
PMID:31104476
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6716206/
Abstract

OBJECTIVE

To investigate the experiences of chronic stroke patients and non-professional coaches with home-based constraint-induced movement therapy (homeCIMT).

DESIGN

Qualitative study embedded within a cluster randomized controlled trial investigating the efficacy of homeCIMT to improve the use of the affected arm in daily activities.

SETTING

Patients' home environment.

PARTICIPANTS

13 stroke patients and 9 non-professional coaches' alias family members who had completed the four-week homeCIMT programme in the context of the HOMECIMT trial.

INTERVENTIONS

Semi-structured interviews; qualitative data were analysed using the methodology of the hermeneutic phenomenological data analysis.

RESULTS

We identified six themes in the qualitative analysis describing the experiences of patients and non-professional coaches with homeCIMT: (1) homeCIMT can be integrated into everyday life with varying degrees of success; (2) training together may produce positive experiences as well as strain; (3) self-perceived improvements during and following homeCIMT; (4) using the affected arm in everyday life is challenging; (5) subjective evaluation of and experiences with homeCIMT-specific exercises; and (6) impact of professional therapists' guidance and motivation during homeCIMT. Statements regarding theme five and six were only provided by patients, whereas the other themes contain both, the experiences of stroke patients and non-professional coaches.

CONCLUSION

Patients' and non-professional coaches' narratives offer a detailed insight into the manifold experiences with the practical implementation of homeCIMT that may help improve implementing the homeCIMT programme and similar approaches involving increased training duration and intensity and/or involvement of family members.

摘要

目的

调查慢性中风患者和非专业教练在家庭强制性运动疗法(homeCIMT)中的体验。

设计

嵌入在一项群组随机对照试验中的定性研究,该试验旨在调查 homeCIMT 改善日常活动中患侧手臂使用的效果。

设置

患者的家庭环境。

参与者

13 名中风患者和 9 名非专业教练(化名家庭成员),他们在 HOMECIMT 试验中完成了四周的 homeCIMT 方案。

干预措施

半结构化访谈;使用解释学现象学数据分析方法对定性数据进行分析。

结果

我们在定性分析中确定了六个主题,描述了患者和非专业教练在家庭 CIMT 中的体验:(1)家庭 CIMT 可以在不同程度上融入日常生活;(2)一起训练可能会产生积极的体验,也可能会产生紧张;(3)自我感知的训练期间和之后的改善;(4)在日常生活中使用患侧手臂具有挑战性;(5)对家庭 CIMT 特定运动的主观评价和体验;(6)家庭 CIMT 期间专业治疗师指导和激励的影响。主题五和六的陈述仅由患者提供,而其他主题包含中风患者和非专业教练的体验。

结论

患者和非专业教练的叙述提供了对家庭 CIMT 实际实施的多方面体验的详细了解,这可能有助于改善家庭 CIMT 方案的实施以及类似的方法,包括增加训练时间和强度以及/或家庭成员的参与。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3e0b/6716206/6ad06b86038d/10.1177_0269215519848813-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3e0b/6716206/6ad06b86038d/10.1177_0269215519848813-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3e0b/6716206/6ad06b86038d/10.1177_0269215519848813-fig1.jpg

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