Casado da Rocha Antonio
Camb Q Healthc Ethics. 2014 Apr;23(2):200-8. doi: 10.1017/S096318011300073X.
This article proposes a concept of narrative autonomy to supplement existing accounts in healthcare ethics. This is done by means of a comparison between three end-of-life scenarios: Tolstoy's The Death of Ivan Ilyich and two related contemporary stories by Lorrie Moore and Bernhard Schlink, which explore some problems arising when extremely individualistic notions of patient autonomy are put into practice. It is argued that the best model for palliative care is a cooperative one in which patient autonomy is understood as essentially social, and that involves decisional, executive, informational, and narrative dimensions.
本文提出了叙事自主性的概念，以补充医疗保健伦理中的现有观点。这是通过比较三个临终场景来实现的：托尔斯泰的《伊凡·伊里奇之死》以及洛里·摩尔和伯恩哈德·施林克的两篇相关当代故事，这些故事探讨了将极端个人主义的患者自主性观念付诸实践时出现的一些问题。文章认为，姑息治疗的最佳模式是一种合作模式，其中患者自主性本质上被理解为社会性的，并且涉及决策、执行、信息和叙事维度。
