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[炎症性风湿疾病患者的社会参与和日常生活活动:自助、运动疗法及新媒体的支持]

[Social participation and activities of daily living of patients with inflammatory rheumatic diseases : support by self-help, exercise therapy and new media].

作者信息

Mattukat K, Thyrolf A

机构信息

Institut für Rehabilitationsmedizin, Medizinische Fakultät der Martin-Luther-Universität Halle-Wittenberg, Magdeburger Str. 8, 06097, Halle (Saale), Deutschland,

出版信息

Z Rheumatol. 2014 Feb;73(1):42-8. doi: 10.1007/s00393-013-1209-7.

Abstract

Rheumatic patients are at risk of social isolation and physical inactivity which can have a significant impact on physical and mental health. Only every seventh patient is organized in a self-help group (SHG), most of them in the German League Against Rheumatism (GLAR). Members of a SHG are socially and physically more active and take part in exercise therapy (ET) more often. Depending on the study, the utilization of ET ranges from 25 % to 71 %. The functional training as the most attended offer of the GLAR showed positive effects at the physical and psychological levels. To motivate difficult to reach patients to engage in self-help and regular exercise, further development of exercise programs with individually tailored intensive strength and endurance elements as well as the increased use of new media seems promising. The Internet provides various opportunities for networking and social participation especially for severely impaired and temporally less flexible patients.

摘要

风湿性疾病患者面临社会隔离和身体活动不足的风险,这会对身心健康产生重大影响。只有七分之一的患者加入了自助小组(SHG),其中大多数隶属于德国抗风湿联盟(GLAR)。自助小组的成员在社交和身体活动方面更为活跃,也更常参加运动疗法(ET)。根据研究,运动疗法的利用率在25%至71%之间。作为GLAR最常提供的服务,功能训练在身体和心理层面都显示出积极效果。为了激励难以接触到的患者参与自助和定期锻炼,进一步开发包含量身定制的强化力量和耐力元素的运动项目以及更多地使用新媒体似乎很有前景。互联网为社交网络和社会参与提供了各种机会,特别是对于严重残疾和时间灵活性较低的患者。

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