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比较荷兰生命线研究和H3非洲计划的中心辐射模型实践。

Comparing the hub-and-spoke model practices of the LifeLines Study in the Netherlands and the H3Africa Initiative.

作者信息

Bruinenberg Marcel, Frey Martin, Napier Mary, Summers Annette

机构信息

1 LifeLines Cohort Study, University of Groningen , University Medical Center, Groningen, the Netherlands .

出版信息

Biopreserv Biobank. 2014 Feb;12(1):13-6. doi: 10.1089/bio.2013.0057.

Abstract

Biobank sample storage is critical in population health and epidemiology studies. Biobanks bridge two very different worlds: they connect to the participants and patients at an individual level, but they also aggregate information and represent the cutting edge of scientific discovery. In this brief report, we describe how the LifeLines study in the Netherlands manages its resources for communication and services, and how it can serve as a model for the Human Heredity and Health in Africa Initiative (H3Africa Initiative).

摘要

生物样本库的样本存储在人群健康和流行病学研究中至关重要。生物样本库连接着两个截然不同的世界:它们在个体层面与参与者和患者建立联系,但同时也汇总信息并代表着科学发现的前沿。在本简要报告中,我们描述了荷兰的生命线研究如何管理其沟通和服务资源,以及它如何能够成为非洲人类遗传与健康倡议(H3Africa倡议)的一个典范。

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