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生命终结、慢性病与跨性别身份认同。

End of life, chronic illness, and trans-identities.

作者信息

Witten Tarynn M

机构信息

a Center for the Study of Biological Complexity , Virginia Commonwealth University , Richmond , Virginia , USA.

出版信息

J Soc Work End Life Palliat Care. 2014;10(1):34-58. doi: 10.1080/15524256.2013.877864.

DOI:10.1080/15524256.2013.877864
PMID:24628141
Abstract

In this study, the experiences and needs of a sample of 1,963 current, global, English-speaking, transgender-identified adults responding to the Transgender MetLife Survey (TMLS) as related to a number of later-life and end-of-life (EOL) preparations and concerns were examined. EOL concerns are integrated with concerns and challenges around chronic illness and disability. Overall, this population was significantly ill-prepared for the major legalities and events that occur in the later to EOL time periods. The population was found to harbor significant fears around the future. Drawing on the author's decades of survey research in transgender aging and case data along with current scientific and online literature, illustrative quotations and case examples are provided.

摘要

在本研究中,对1963名全球范围内讲英语的跨性别成年人样本进行了调查,这些人回应了跨性别大都会人寿调查(TMLS),研究考察了他们在一些晚年和临终(EOL)准备及担忧方面的经历和需求。临终担忧与围绕慢性病和残疾的担忧及挑战交织在一起。总体而言,这一群体对晚年到临终阶段发生的主要法律事务和事件准备严重不足。研究发现,这一群体对未来怀有重大恐惧。作者借鉴了在跨性别者老龄化方面数十年的调查研究、案例数据以及当前的科学和网络文献,提供了说明性引语和案例示例。

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