Leonard Rosemary, Horsfall Debbie, Noonan Kerrie
CSIRO Perth Australia and University of Western Sydney, Sydney, Australia.
School of Social Sciences and Psychology, University of Western Sydney, Sydney, Australia.
BMJ Support Palliat Care. 2015 Jun;5(2):153-9. doi: 10.1136/bmjspcare-2012-000257. Epub 2013 Nov 19.
End-of-life caring is often associated with reduced social networks for both the dying person and for the carer. However, those adopting a community participation and development approach, see the potential for the expansion and strengthening of networks. This paper uses Knox, Savage and Harvey's definitions of three generations social network analysis to analyse the caring networks of people with a terminal illness who are being cared for at home and identifies changes in these caring networks that occurred over the period of caring. Participatory network mapping of initial and current networks was used in nine focus groups. The analysis used key concepts from social network analysis (size, density, transitivity, betweenness and local clustering) together with qualitative analyses of the group's reflections on the maps. The results showed an increase in the size of the networks and that ties between the original members of the network strengthened. The qualitative data revealed the importance between core and peripheral network members and the diverse contributions of the network members. The research supports the value of third generation social network analysis and the potential for end-of-life caring to build social capital.
临终关怀往往与临终者及其照料者的社交网络减少有关。然而，那些采用社区参与和发展方法的人认为存在扩大和加强社交网络的潜力。本文运用诺克斯、萨维奇和哈维对三代社会网络分析的定义，分析在家中接受照料的绝症患者的照料网络，并确定在照料期间这些照料网络发生的变化。九个焦点小组采用了初始网络和当前网络的参与式网络映射。分析使用了社会网络分析的关键概念（规模、密度、传递性、中间性和局部聚类）以及对小组对地图反思的定性分析。结果显示网络规模有所增加，网络原有成员之间的联系得到加强。定性数据揭示了核心和边缘网络成员之间的重要性以及网络成员的多样贡献。该研究支持第三代社会网络分析的价值以及临终关怀构建社会资本的潜力。
