School of Social Sciences and Psychology, Western Sydney University, Locked Bag 1797, Penrith, NSW 2751, Australia.
School of Social Sciences and Psychology, Western Sydney University, Penrith, Australia.
Health Place. 2017 Jul;46:58-64. doi: 10.1016/j.healthplace.2017.04.003. Epub 2017 May 9.
Although the burden of caring is well described, the value of home as a potential place of wellbeing and support for informal caring networks when providing end-of-life care is not well recognised. Interviews and focus groups with 127 primary carers and members of informal care networks revealed their collaborative stories about caring for a dying person at home. Four themes emerged from the data: home as a place of comfort and belonging; places of social connection and collaborative caring; places of connection to nature and the non-human; places of achievement and triumph. When support is available, nurturing carer wellbeing may be best achieved at home.
尽管照顾的负担描述得很详细，但家庭作为提供临终关怀时非正式照顾网络的福祉和支持的潜在场所的价值尚未得到充分认可。通过对 127 名主要照顾者和非正式照顾网络成员的访谈和焦点小组，揭示了他们在家中照顾临终者的协作故事。从数据中得出了四个主题：家庭是舒适和归属的地方；社会联系和协作照顾的场所；与自然和非人类联系的地方；取得成就和胜利的地方。当有支持时，在家中满足照顾者的幸福感可能是最佳选择。
