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Certificates of confidentiality and informed consent: perspectives of IRB chairs and institutional legal counsel.保密证书与知情同意书：机构审查委员会主席及机构法律顾问的观点
IRB. 2014 Jan-Feb;36(1):1-8.
2
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3
Certificates should be retired.证书应予以作废。
Science. 2009 Mar 6;323(5919):1288-9. doi: 10.1126/science.323.5919.1288c.
4
HIPAA Privacy Rule 2.0.《健康保险流通与责任法案》隐私规则2.0
J Law Med Ethics. 2013 Summer;41(2):525-8. doi: 10.1111/jlme.12060.
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Certificates should be strengthened.证书应予以强化。
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Ethical and legal implications of whole genome and whole exome sequencing in African populations.全基因组和全外显子组测序在非裔人群中的伦理和法律影响。
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Research Information for Reasonable People.合理人的研究信息。
Hastings Cent Rep. 2018 Nov;48(6):3-4. doi: 10.1002/hast.927.
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Research ethics. Certificates of confidentiality and compelled disclosure of data.研究伦理。保密证书与数据的强制披露。
Science. 2008 Nov 14;322(5904):1054-5. doi: 10.1126/science.1164100.
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Confidentiality certificates and privacy of research subjects.保密证书与研究对象的隐私。
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Protecting Participants in Genomic Research: Understanding the "Web of Protections" Afforded by Federal and State Law.保护基因组研究参与者：了解联邦和州法律所提供的“保护网”。
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Challenges to Studying Illicit Drug Users.研究非法药物使用者面临的挑战。
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HIPAA's Individual Right of Access to Genomic Data: Reconciling Safety and Civil Rights.HIPAA 对基因组数据的个人访问权：协调安全和公民权利。
Am J Hum Genet. 2018 Jan 4;102(1):5-10. doi: 10.1016/j.ajhg.2017.12.004.
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Certificates of Confidentiality: Protecting Human Subject Research Data in Law and Practice.保密证书：在法律与实践中保护人体受试者研究数据
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Research Participants' Understanding of and Reactions to Certificates of Confidentiality.研究参与者对保密证书的理解与反应
AJOB Prim Res. 2014 Jan 1;5(1):12-22. doi: 10.1080/21507716.2013.813596.

本文引用的文献

1
Certificates of Confidentiality: Protecting Human Subject Research Data in Law and Practice.保密证书：在法律与实践中保护人类受试者研究数据
Minn J Law Sci Technol. 2013 Feb 12;14(1):11-87.
2
Research Participants' Understanding of and Reactions to Certificates of Confidentiality.研究参与者对保密证书的理解与反应
AJOB Prim Res. 2014 Jan 1;5(1):12-22. doi: 10.1080/21507716.2013.813596.
3
Certificates of confidentiality: legal counsels' experiences with and perspectives on legal demands for research data.保密证书：法律顾问对研究数据法律要求的经验与看法
J Empir Res Hum Res Ethics. 2012 Oct;7(4):1-9. doi: 10.1525/jer.2012.7.4.1.
4
Institutional review boards' use and understanding of certificates of confidentiality.机构审查委员会对保密证书的使用和理解。
PLoS One. 2012;7(9):e44050. doi: 10.1371/journal.pone.0044050. Epub 2012 Sep 4.
5
Research Participants' Perceptions of the Certificate of Confidentiality's Assurances and Limitations.研究参与者对保密证书的保障措施及局限性的看法。
J Empir Res Hum Res Ethics. 2007 Dec;2(4):53-9. doi: 10.1525/jer.2007.2.4.53.
6
Research ethics. Certificates of confidentiality and compelled disclosure of data.研究伦理。保密证书与数据的强制披露。
Science. 2008 Nov 14;322(5904):1054-5. doi: 10.1126/science.1164100.
7
Sleeping better at night: investigators' experiences with certificates of confidentiality.夜间睡眠质量更佳：研究人员使用保密证书的经历
IRB. 2006 Nov-Dec;28(6):1-7.

Certificates of confidentiality and informed consent: perspectives of IRB chairs and institutional legal counsel.

作者信息

Check Devon K, Wolf Leslie E, Dame Lauren A, Beskow Laura M

出版信息

IRB. 2014 Jan-Feb;36(1):1-8.

PMID:24649737
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4076050/
Abstract
摘要