de Rosenroll Alexis, Higuchi Kathryn Smith, Dutton Katherine Standish, Murray Mary Ann, Stacey Dawn
CANNT J. 2013 Oct-Dec;23(4):17-24.
To explore the experience of the dialysis modality decision-making process from the perspective of the significant other.
A qualitative interpretive description study was conducted using the Interprofessional Shared Decision Making Model (Légaré et al., 2011). Data collection included one-on-one, semi-structured interviews, the Decisional Regret Scale, and the SURE tool.
Ten significant others were interviewed. They included wives, husbands, and daughters of dialysis patients. Their roles involved providing a positive outlook, "being with", advocating, caregiving, learning together, sharing opinions, and communicating values, preferences and treatment feasibility. Broader factors influencing significant others included choosing life, unanticipated life change, and personal health problems. Implementation of the chosen modality resulted in unanticipated events, relationship changes and challenges to travelling.
Significant others play supportive roles for dialysis patients and are involved in the decision-making process associated with treatment decisions. Significant others may have concurrent emotional, informational, and physical needs that affect their role in making and/or implementing the decision.
从重要他人的角度探索透析方式决策过程的体验。
采用跨专业共同决策模型（Légaré等人，2011年）进行定性解释性描述研究。数据收集包括一对一的半结构化访谈、决策遗憾量表和SURE工具。
对10位重要他人进行了访谈。他们包括透析患者的妻子、丈夫和女儿。他们的角色包括提供积极的前景、“陪伴”、倡导、照顾、共同学习、分享意见以及传达价值观、偏好和治疗可行性。影响重要他人的更广泛因素包括选择生活、意外的生活变化和个人健康问题。所选透析方式的实施导致了意外事件、关系变化和出行挑战。
重要他人对透析患者起到支持作用，并参与与治疗决策相关的决策过程。重要他人可能同时有情感、信息和身体方面的需求，这些需求会影响他们在决策和/或实施决策中的角色。
