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赋权之路:评估新西兰的一项癌症教育与支持项目

A pathway to empowerment: evaluating a cancer education and support programme in New Zealand.

作者信息

Kane P, Jasperse M, Boland P, Herst P

机构信息

Department of Radiation Therapy, School of Medicine and Health Science, University of Otago Wellington, Wellington South, New Zealand.

出版信息

Eur J Cancer Care (Engl). 2014 Sep;23(5):668-74. doi: 10.1111/ecc.12188. Epub 2014 Feb 13.

Abstract

Support programmes often benefit cancer patients and their families. This study evaluates how the Living Well Cancer Education Programme (LWCEP), from the Cancer Society of New Zealand, meets the needs of its clients. A purposeful sample of 21 participants representing the normal range of demographic characteristics (age, gender, diagnosis and geographical location) for the programme, participated in semi-structured interviews. Demographic data were subjected to a frequency analysis. Main data were collected and analysed using a constructivist grounded theory approach regarding the experiences of the participants with being on the programme and recommendations for future development. Of the 21 participants, 14 were cancer patients (eight women and six men) and seven were support people (five women and two men). The LWCEP was described as a safe, supportive and stimulating environment, provided a powerful sense of belonging, empowered participants to gain perspective, enhance their confidence and communication skills and make increasingly informed choices. Consistent with a previous evaluation focussing on the facilitators of the LWCEP, there was a strong desire for better promotion of the programme to the wider community, establishment of a better referral pathway and the potential to offer two separate programmes depending on the stage of a patient's journey.

摘要

支持项目通常会使癌症患者及其家人受益。本研究评估了新西兰癌症协会的“癌症患者健康生活教育项目”(LWCEP)如何满足其客户的需求。从该项目具有正常人口统计学特征范围(年龄、性别、诊断结果和地理位置)的参与者中,有目的地抽取了21人参与半结构化访谈。对人口统计学数据进行了频率分析。主要数据采用建构主义扎根理论方法进行收集和分析,内容涉及参与者参与该项目的经历以及对未来发展的建议。21名参与者中,14名是癌症患者(8名女性和6名男性),7名是陪护人员(5名女性和2名男性)。LWCEP被描述为一个安全、支持性和激励性的环境,提供了强烈的归属感,使参与者能够获得洞察力,增强信心和沟通技巧,并做出更明智的选择。与之前一项关注LWCEP促进者的评估一致,人们强烈希望能更好地向更广泛的社区推广该项目,建立更好的转诊途径,并有可能根据患者病程阶段提供两个独立的项目。

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