Department of Design Sciences, Lund University, Lund, Sweden.
School of Social Work, Lund University, Lund, Sweden.
Int J Qual Stud Health Well-being. 2021 Dec;16(1):1926052. doi: 10.1080/17482631.2021.1926052.
Cancer research and connected innovation processes often lack a major component; patient participation. We revisit three studies (a-c) in order to explore how Momentary contentment theory may be used to improve patient participation and psychosocial health.
We revisited data from the initial (a) classic grounded theory study on Momentary contentment, based on four years of observation and 14 interviews. It explains a way of dealing with life close to death and morbidity. In the imminence of danger the studied culture resembles the context of cancer patients. The two following studies used focus group interviews with (b) 19 cancer patients and (c) 17 relatives of cancer patients in southern Sweden.
We suggest a process where cancer patients are taught to be submissive and that the support they receive from health providers may be counterproductive to contentment; a patientification process. We present alternative ways for people to handle issues such as hope, waiting, knowledge gaps and healthcare navigation while living with cancer. We introduce an alternative to patientification and passive patients where active patients create their own safety and truly participates in their care.
We propose clinical studies to introduce such a shift from patentification to co-creation of care.
癌症研究和相关创新过程往往缺乏一个主要组成部分；患者参与。我们重新审视了三项研究（a-c），以探讨如何利用瞬间满足理论来提高患者的参与度和心理社会健康。
我们重新审视了最初（a）关于瞬间满足的经典扎根理论研究的数据，该研究基于四年的观察和 14 次访谈。它解释了一种接近死亡和发病的应对生活的方式。在所研究的文化中，在危险迫在眉睫的情况下，类似于癌症患者的背景。随后的两项研究使用焦点小组访谈的方式，在瑞典南部（b）对 19 名癌症患者和（c）17 名癌症患者的亲属进行了访谈。
我们提出了一个过程，即教导癌症患者顺从，而他们从医疗保健提供者那里获得的支持可能会适得其反，从而导致患者化；一个患者化过程。我们提出了一些替代的方法来处理诸如希望、等待、知识差距和医疗保健导航等问题，同时患有癌症。我们引入了一种替代患者化和被动患者的方法，即积极的患者自己创造安全，并真正参与自己的护理。
我们建议进行临床研究，以实现从患者化到共同创造护理的转变。
