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莫吉隆斯症患者的信息、同意与治疗:伦理视角

Information, consent and treatment of patients with Morgellons disease: an ethical perspective.

作者信息

Söderfeldt Ylva, Groß Dominik

机构信息

Institut für Geschichte, Theorie und Ethik der Medizin, Medizinische Fakultät der RWTH Aachen, Universitätsklinikum Aachen, Wendlingweg 2, 52074, Aachen, Germany,

出版信息

Am J Clin Dermatol. 2014 Apr;15(2):71-6. doi: 10.1007/s40257-014-0071-y.

Abstract

Morgellons is a medically contested diagnosis with foremost dermatological symptoms. Patients experience fibers emerging from the skin, together with a range of other somatic, psychiatric, and neurological complaints. Within the medical community, it is generally held to be a variation of delusional parasitosis/delusional infestation, which is usually treated with antipsychotics. Little attention has been paid in the literature to the ethical aspects of treating patients with Morgellons disease. The communicative strategies suggested in the literature display significant ethical issues, primarily the use of therapeutic privilege, i.e. withholding information from the patient. Since this limits patient autonomy, that approach is ethically problematic. Instead, the physician has an ethical obligation to respect the patient's autonomy, provide full information, and seek consent before initiating a psychiatric referral.

摘要

莫吉隆斯症是一种在医学上存在争议的诊断,主要表现为皮肤病症状。患者会感到有纤维从皮肤中长出,同时伴有一系列其他躯体、精神和神经方面的不适。在医学界,普遍认为它是妄想性寄生虫病/妄想性感染的一种变体,通常用抗精神病药物进行治疗。文献中很少关注治疗莫吉隆斯症患者的伦理问题。文献中建议的沟通策略存在重大伦理问题,主要是使用治疗特权,即对患者隐瞒信息。由于这限制了患者的自主权,这种方法在伦理上存在问题。相反,医生有伦理义务尊重患者的自主权,提供充分信息,并在进行精神科转诊前寻求患者同意。

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