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奥地利农村类风湿关节炎患者的护理质量。

Quality of care of rural rheumatoid arthritis patients in Austria.

作者信息

Puchner Rudolf, Brezinschek Hans Peter, Herold Manfred, Nothnagl Thomas, Studnicka-Benke Andrea, Fritz Josef, Leeb Burkhard F

机构信息

Rheumatologist in private practice, Freiung 19, 4600, Wels, Austria,

出版信息

Wien Klin Wochenschr. 2014 Jun;126(11-12):360-7. doi: 10.1007/s00508-014-0540-6. Epub 2014 Mar 28.

DOI:10.1007/s00508-014-0540-6
PMID:24676628
Abstract

OBJECTIVES

To determine how fast rheumatoid arthritis (RA) was diagnosed in a group of patients in a rural area and whether medical care and patient satisfaction were adequate in a predominantly non-urban settlement.

METHODS

When visiting their rheumatologist, patients with RA were asked to complete a questionnaire at home after the consultation and then return it to an independent opinion research centre, where the data were collected and analysed. The form comprised various areas, namely demography, aspects of the diagnosis, medical care, therapeutic measures and the illness in a personal context.

RESULTS

Of 150 patients, 127 answered the questionnaire. A total of 63 % of the patients lived in settlements of less than 5,000 inhabitants, and a further 18 % in settlements of more than 5,000-50,000 inhabitants. The rheumatologist attended could be reached within 1 h for 90 % of the patients. In slightly fewer than 30 % of the respondents, the diagnosis of RA was made within 3 months, and in 44%, within 6 months. In 75 %, the diagnosis was made by a rheumatologist. After experiencing the first symptoms, 80 % of the respondents contacted their general practitioner. A high degree of satisfaction appears to originate from the information supplied by the rheumatologist attended. Most patients believed they were involved in decision making regarding their therapy.

CONCLUSION

The majority of the respondents came from rural areas. RA was diagnosed within 6 months for almost half of the patients questioned. Most patients believed they were well informed and involved in therapeutic decision making.

摘要

目的

确定在一个农村地区的一组患者中类风湿关节炎(RA)的诊断速度有多快,以及在一个主要为非城市的定居点中医疗护理和患者满意度是否充足。

方法

类风湿关节炎患者在就诊后被要求在家中完成一份问卷,然后将其返还给一个独立的意见研究中心,在那里收集和分析数据。该表格包括各个方面,即人口统计学、诊断方面、医疗护理、治疗措施以及个人背景下的疾病情况。

结果

150名患者中,127名回答了问卷。共有63%的患者居住在居民人数少于5000人的定居点,另有18%居住在居民人数超过5000 - 50000人的定居点。90%的患者在1小时内能够联系到所就诊的风湿病专家。略少于30%的受访者在3个月内被诊断为RA,44%在6个月内被诊断。75%的诊断由风湿病专家做出。在出现最初症状后,80%的受访者联系了他们的全科医生。高度的满意度似乎源于所就诊的风湿病专家提供的信息。大多数患者认为他们参与了关于自身治疗的决策。

结论

大多数受访者来自农村地区。近一半接受询问的患者在6个月内被诊断出患有RA。大多数患者认为他们得到了充分的信息并参与了治疗决策。

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Future expectations and worst-case future scenarios of patients with rheumatoid arthritis: a focus group study.类风湿关节炎患者的未来期望与最坏情况设想:一项焦点小组研究。
Musculoskeletal Care. 2012 Dec;10(4):240-7. doi: 10.1002/msc.1026. Epub 2012 Jun 20.
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[Treat-to-target from the patient perspective].从患者角度看的治疗达标
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[Diagnostic spectrum, treatment indication and symptom duration in initial referrals to the rheumatologist].[风湿病专科医生初次会诊时的诊断范围、治疗指征及症状持续时间]
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Delay in receiving rheumatology care leads to long-term harm.接受风湿病护理的延迟会导致长期伤害。
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