Gromnica-Ihle E, Rink M
Deutsche Rheuma-Liga, Majakowskiring 11, 13156, Berlin, Deutschland.
Z Rheumatol. 2011 Oct;70(8):678-84. doi: 10.1007/s00393-011-0773-y.
The international treat-to-target initiative including rheumatoid arthritis (RA) patients has defined remission or alternatively low disease activity as treatment goals. In Germany representatives of the medical profession, such as doctors, nurses and including the Deutsche Rheuma-Liga, are deliberating how to adapt and realize these goals in practice. The patient's perspective has to be taken into consideration as an outcome variable. Until now no combined patient reported outcome (PRO) score exists which is generally accepted by the scientific community and which puts the patient's perspective as the main primary outcome.Patients and doctors ought to decide jointly about the therapy goal remission/low disease activity and about other PROs and the planned strategy to achieve these goals. A precondition is that a sufficient timeframe is still available for this. The joint target of the medical profession and the Deutsche Rheuma-Liga is 1 rheumatologist per 50,000 adult inhabitants. An interdisciplinary and multidisciplinary treatment of RA patients is just as imperative as the expansion of patient training, information and self-management programs.
包括类风湿关节炎（RA）患者在内的国际达标治疗倡议已将缓解或低疾病活动度定义为治疗目标。在德国，医学专业代表，如医生、护士以及德国风湿病联盟，正在商讨如何在实践中调整并实现这些目标。必须将患者的观点作为一个结果变量加以考虑。到目前为止，尚无一个被科学界普遍接受的、以患者观点作为主要主要结果的综合患者报告结局（PRO）评分。患者和医生应该共同决定治疗目标是缓解/低疾病活动度以及其他PRO，以及实现这些目标的计划策略。前提是仍有足够的时间框架来进行此事。医学专业和德国风湿病联盟的共同目标是每50000名成年居民有1名风湿病专家。对RA患者进行跨学科和多学科治疗与扩大患者培训、信息和自我管理项目同样至关重要。
