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加拿大一个国际化城市中照顾胃痛儿童的多种途径。

Diverse pathways to care for children with stomach pain in a Canadian cosmopolitan city.

作者信息

Fortin Sylvie, Gauthier Annie, Gomez Liliana, Bibeau Gilles, Rasquin Andrée, Faure Christophe

机构信息

Anthropology Department, Université de Montréal, Montréal, Quebec, Canada; Pediatric Department, Université de Montréal, Montréal, Quebec, Canada; Research Center, Sainte-Justine's Pediatric University Hospital, Montréal, Quebec, Canada.

出版信息

Health Soc Care Community. 2014 Sep;22(5):515-23. doi: 10.1111/hsc.12109. Epub 2014 Apr 3.

Abstract

In Montreal, Quebec, 31% of the population is born outside Canada. Yet, only 9% of patient consultations for symptoms associated with functional gastrointestinal disorders (FGIDs) are from immigrants at the Paediatric Gastroenterology Clinic at Sainte-Justine's University Hospital Centre. This discrepancy inspired a multidisciplinary exploratory study (anthropological and paediatric) to examine the sociological, interpretative and pragmatic aspects of immigrant and non-immigrant patients and family life with FGIDs. This paper examines the discrepancy between immigrant and non-immigrant paediatric patients with FGIDs and presents the different pathways to care utilised by families. Semi-structured interviews were carried out between November 2008 and June 2009, with children and their parents. In total, 38 families were recruited: with 27 families (including a child experiencing abdominal pain, his/her siblings, mother and/or father as well as any other significant individual living in the family home) from the community and 11 from the paediatric gastroenterology clinic. A comparative analysis between the immigrant and non-immigrant groups focused on perceptions, meanings and actions taken to relieve/alleviate symptoms. Immigrant and non-immigrant families alternate and combine different therapeutic environments: home, alternative healing therapies and medical paths to care. Our analysis suggests that culture (as a set of values, beliefs and ways of being), as well as social interactions within family life and the clinic, shape pathways to care. The analysis highlights the centrality of receptiveness--and more widely the social dimensions--of all medical encounters. Treatment disparities between immigrant and non-immigrant families in pathways to care help us to understand these patients' social world and the intricate relationships between values and social milieux, between culture, practices of symptom management and rationales guiding diverse therapeutic actions.

摘要

在魁北克省的蒙特利尔,31%的人口出生在加拿大境外。然而,在圣贾斯汀大学医院中心的儿科胃肠病诊所,因功能性胃肠疾病(FGIDs)相关症状前来就诊的患者中,只有9%是移民。这种差异引发了一项多学科探索性研究(人类学和儿科学),以考察患有FGIDs的移民和非移民患者及其家庭生活的社会学、解释学和实用主义方面。本文研究了患有FGIDs的移民和非移民儿科患者之间的差异,并呈现了家庭采用的不同就医途径。2008年11月至2009年6月期间,对儿童及其父母进行了半结构化访谈。总共招募了38个家庭:其中27个家庭(包括一名腹痛儿童、其兄弟姐妹、母亲和/或父亲以及住在家里的其他任何重要成员)来自社区,11个家庭来自儿科胃肠病诊所。对移民和非移民群体的比较分析聚焦于缓解/减轻症状所采取的认知、意义和行动。移民和非移民家庭交替并结合了不同的治疗环境:家庭、替代疗法和就医途径。我们的分析表明,文化(作为一套价值观、信仰和生活方式)以及家庭生活和诊所内的社会互动塑造了就医途径。该分析突出了所有医疗接触中接受性——以及更广泛地说社会层面—— 的核心地位。移民和非移民家庭在就医途径上的治疗差异有助于我们理解这些患者的社会世界,以及价值观与社会环境、文化、症状管理实践和指导不同治疗行动的基本原理之间的复杂关系。

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