Bultas Margaret W, Pohlman Shawn
St. Louis University, School of Nursing, St. Louis, MO.
Maryville University, St. Louis, MO.
J Pediatr Nurs. 2014 Nov-Dec;29(6):596-605. doi: 10.1016/j.pedn.2014.03.023. Epub 2014 Mar 19.
The purpose of this interpretive phenomenological study was to gain a better understanding of the experiences of 11 mothers of preschool children with autism spectrum disorder (ASD). Mothers were interviewed three times over a 6 week period. Interviews were analyzed using interpretive methods. This manuscript highlights one particular theme-a positive perspective mothers described as the "silver lining." This "silver lining" represents optimism despite the adversities associated with parenting a child with ASD. A deeper understanding of this side of mothering children with ASD may help health care providers improve rapport, communication, and result in more authentic family centered care.
这项解释性现象学研究的目的是更深入地了解11位患有自闭症谱系障碍（ASD）学龄前儿童的母亲的经历。在6周的时间里，对母亲们进行了三次访谈。采用解释性方法对访谈进行分析。本手稿突出了一个特定主题——母亲们描述为“一线希望”的积极观点。这种“一线希望”代表了尽管养育患有ASD的孩子存在诸多困难，但仍保持乐观。更深入地了解养育患有ASD孩子的母亲的这一面，可能有助于医疗保健提供者改善融洽关系、沟通，并带来更真实的以家庭为中心的护理。
