St. Louis University, School of Nursing, St. Louis, MO, USA.
J Pediatr Nurs. 2012 Oct;27(5):460-70. doi: 10.1016/j.pedn.2011.05.005. Epub 2011 Jul 8.
It is known that children with autism spectrum disorder (ASD) visit health care providers (HCPs) more frequently than typically developing peers, and mothers experience barriers in this process. The purpose of this interpretive phenomenological study was to gain a better understanding of a mother's experiences of taking her child with ASD to the HCP. Two themes related to the health care experience of the child surfaced from the study. These themes included feelings that HCPs do not "get" the complexity of caring for the child and marginalization of mothers by the HCP. The need for creation of child-specific profiles emerged from this study.
已知自闭症谱系障碍（ASD）儿童比一般发育儿童更频繁地就诊于医疗保健提供者（HCP），而母亲在这一过程中会遇到障碍。本解释性现象学研究的目的是更好地理解母亲带孩子就诊 ASD 儿童 HCP 的经历。研究中出现了两个与儿童医疗保健体验相关的主题。这些主题包括 HCP 不“理解”照顾孩子的复杂性以及 HCP 对母亲的边缘化的感受。本研究还提出了创建针对儿童的特定档案的需求。
