Department of Adolescent Urology, University College London Hospitals, 250 Euston Road, London NW1 2BU, UK.
Nat Rev Urol. 2014 May;11(5):289-96. doi: 10.1038/nrurol.2014.71. Epub 2014 Apr 8.
Complex congenital urological anomalies often necessitate ongoing clinical and surgical management as patients reach adulthood and beyond. However, adolescent and lifelong care of such conditions is a relatively new urological specialty, and approaches to transitional health care require further development. Thus, although literature relating to the use of such approaches in urology are lacking, we are able to draw upon experience of models from other specialties. Urological anomalies might complicate an individual's development, particularly during adolescence, which represents a time of rapid and considerable change in most aspects of life. During this period, increased independence and responsibility, necessitating a shift from parent-driven to patient-driven care, and the desire to develop important and intimate social relationships can affect a patient's ability to cope with, and manage, disease. These factors also influence the ability of health-care providers to deliver adequate treatment. In particular, consideration of the effect of a condition or its treatment on the patient's capacity to live a normal life is important. A multidisciplinary approach is essential to overcoming these issues. Furthermore, diagnostic and treatment registries, as well as an increase in the number of adult-focused urologists willing to participate in the transition of patients from paediatric to adult care, are needed to enable provision of optimal patient care for the future.
复杂的先天性泌尿系统异常通常需要持续的临床和手术管理,直到患者成年及以后。然而,青少年和终身护理是一个相对较新的泌尿外科专业,过渡性医疗保健方法需要进一步发展。因此,尽管缺乏与泌尿科使用此类方法相关的文献,但我们可以借鉴其他专业的模型经验。泌尿系统异常可能会影响个体的发育,尤其是在青少年时期,这是生活各方面快速而显著变化的时期。在此期间,独立性和责任感增强,需要从父母驱动的护理模式转变为患者驱动的护理模式,以及发展重要而亲密的社会关系的愿望,这可能会影响患者应对和管理疾病的能力。这些因素也会影响医疗保健提供者提供充分治疗的能力。特别是,考虑疾病或其治疗对患者过上正常生活的能力的影响很重要。多学科方法对于克服这些问题至关重要。此外,需要诊断和治疗登记处,以及增加愿意参与从儿科到成人护理的患者过渡的以成年人为重点的泌尿科医生数量,以确保为未来提供最佳的患者护理。