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功能性尿失禁患儿及其父母的健康相关生活质量和治疗效果。

Health-related quality of life and treatment effects on children with functional incontinence, and their parents.

作者信息

Equit M, Hill J, Hübner A, von Gontard A

机构信息

Department of Child and Adolescent Psychiatry, Saarland University Hospital, 66421 Homburg, Saar, Germany.

出版信息

J Pediatr Urol. 2014 Oct;10(5):922-8. doi: 10.1016/j.jpurol.2014.03.002. Epub 2014 Mar 26.

DOI:10.1016/j.jpurol.2014.03.002
PMID:24726201
Abstract

OBJECTIVE

To analyze treatment outcomes and the association between treatment effects and health-related quality of life (HRQoL) for incontinent children, and their parents.

SUBJECTS AND METHODS

Health-related quality of life in 70 consecutively treated children, and their parents, was assessed with the Pediatric Incontinence Questionnaire and the WHO-Quality-Of-Life-BREF questionnaire. This was assessed before and after three months of standardized treatment.

RESULTS

In 44.3% of children, symptoms decreased by 50-89%. After three months of treatment, the HRQoL of children improved significantly. Children with bladder and bowel dysfunction had a significantly lower HRQoL than children with isolated nocturnal enuresis, daytime urinary incontinence or fecal incontinence. Parental HRQoL did not change significantly within three months of treatment. Parents showed a significantly lower mean in the 'psychological' domain of the WHO-QoL-BREF questionnaire compared to norms.

CONCLUSION

Children with different subtypes of incontinence can be treated effectively within three months of therapy. After three months, significant improvements of HRQoL were shown. Parents showed no general reduction in their quality of life (QoL). Specific aspects of parental QoL were impaired, but did not improve during the treatment of their children.

摘要

目的

分析大小便失禁儿童及其父母的治疗结果以及治疗效果与健康相关生活质量(HRQoL)之间的关联。

对象与方法

使用儿童尿失禁问卷和世界卫生组织生活质量简表(WHO-Quality-Of-Life-BREF questionnaire)对70名接受连续治疗的儿童及其父母的健康相关生活质量进行评估。在标准化治疗前和治疗三个月后进行评估。

结果

44.3%的儿童症状减轻了50 - 89%。治疗三个月后,儿童的健康相关生活质量显著改善。膀胱和肠道功能障碍的儿童的健康相关生活质量显著低于单纯夜间遗尿、白天尿失禁或大便失禁的儿童。父母的健康相关生活质量在治疗三个月内没有显著变化。与标准相比,父母在WHO-QoL-BREF问卷的“心理”领域的平均分显著较低。

结论

不同亚型大小便失禁的儿童在治疗三个月内可得到有效治疗。三个月后,健康相关生活质量有显著改善。父母的生活质量(QoL)总体上没有下降。父母生活质量的特定方面受到损害,但在孩子治疗期间没有改善。

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