Stollery Children's Hospital, Edmonton Alberta, Canada.
J Pediatr Urol. 2013 Feb;9(1):78-83. doi: 10.1016/j.jpurol.2011.12.005. Epub 2012 Jan 10.
Urinary incontinence (UI) negatively affects children's quality of life (QOL). It is not known if parents are reliable informants on impact and QOL nor if lower urinary tract symptoms (LUTS) are related to QOL. We wished to determine the association between LUTS measured by the Dysfunctional Voiding Symptom Score (DVSS) and QOL measured by the Pediatric Urinary Incontinence QOL tool (PIN-Q), and to test the relationship between parent and patient's responses.
Forty children (10 males, 30 females), aged 5-11 years with non-neurogenic daytime wetting, and their parents completed DVSS and PIN-Q as well as responding to open-ended questions about the effect of incontinence.
Child DVSS: mean 12.6 (3 (very mild) to 21 (severe)); parent DVSS: mean 12.8 (3-20). Child PIN-Q: mean 37.6 (8 (no effect) to 70 (severe effect)); parent PIN-Q: mean 38.7 (15-61). Parents indicated a major effect of UI on family function and dynamics, as well as on the child.
UI has a major effect on the child and the family. The PIN-Q and DVSS are complementary and provide a clinically appropriate picture of LUTS and impact on QOL. Parents understood the effect of incontinence and could act as proxy for the child.
尿失禁（UI）会对儿童的生活质量（QOL）产生负面影响。目前尚不清楚父母是否是影响和 QOL 的可靠信息提供者，也不清楚下尿路症状（LUTS）是否与 QOL 相关。我们希望确定通过功能障碍性排尿症状评分（DVSS）测量的 LUTS 与通过小儿尿失禁 QOL 工具（PIN-Q）测量的 QOL 之间的关联，并检验父母和患者反应之间的关系。
40 名年龄在 5-11 岁的非神经源性日间遗尿儿童（10 名男性，30 名女性）及其父母完成了 DVSS 和 PIN-Q，以及回答了关于失禁影响的开放性问题。
儿童 DVSS：平均 12.6（轻度 3 分至重度 21 分）；父母 DVSS：平均 12.8（3-20 分）。儿童 PIN-Q：平均 37.6（无影响 8 分至严重影响 70 分）；父母 PIN-Q：平均 38.7（15-61 分）。父母表示 UI 对家庭功能和动态以及对孩子有重大影响。
UI 对孩子和家庭有重大影响。PIN-Q 和 DVSS 是互补的，提供了 LUTS 和对 QOL 影响的临床适当图像。父母了解失禁的影响，可以作为孩子的代理人。
