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莫桑比克麻风病患者自助小组。

Self-care groups of leprosy-affected people in Mozambique.

作者信息

Deepak Sunil, Hansine Paulo Estivar, Braccini Carole

出版信息

Lepr Rev. 2013 Dec;84(4):283-91.

Abstract

INTRODUCTION

In 2011, the national leprosy control programme in Mozambique decided to promote the setting up of self-care groups (SCGs) for prevention and care of disabilities.

OBJECTIVES

To present an overview of the national SCG strategy and to understand the perceptions of people with leprosy regarding the benefits and challenges of participating in the SCGs in Mozambique.

METHODS

Semi-structured group interviews were carried out with 22 SCGs involving 299 leprosy affected people in Nampula and Manica provinces.

RESULTS

SCGs are involved in different activities and do not limit themselves to activities related to disability care. The majority of respondents expressed satisfaction about their participation in SCGs. Apart from perceived benefits in relation to their disabilities, the majority of SCG members also reported benefits in social participation. Lack of training, insufficient resources for income generation and long distances were the major challenges for SCGs, especially in the Manica province.

CONCLUSIONS

People affected with leprosy perceive SCGs as useful in self-care for prevention of disabilities and social participation.

摘要

引言

2011年,莫桑比克国家麻风病防治项目决定推动设立自我护理小组(SCG),以预防和护理残疾。

目的

概述国家自我护理小组战略,并了解麻风病患者对参与莫桑比克自我护理小组的益处和挑战的看法。

方法

对楠普拉省和马尼卡省的22个自我护理小组进行了半结构化小组访谈,涉及299名麻风病患者。

结果

自我护理小组参与不同活动,并不局限于与残疾护理相关的活动。大多数受访者对参与自我护理小组表示满意。除了在残疾方面感受到的益处外,大多数自我护理小组成员还报告了在社会参与方面的益处。缺乏培训、创收资源不足和路途遥远是自我护理小组面临的主要挑战,尤其是在马尼卡省。

结论

麻风病患者认为自我护理小组在预防残疾的自我护理和社会参与方面很有用。

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