Stern Lisa
Narrat Inq Bioeth. 2014 Spring;4(1):47-52. doi: 10.1353/nib.2014.0022.
This issue of Narrative Inquiry in Bioethics explores the concerns and point of view of parents who have had to confront the devastating diagnosis of a pediatric brain tumor. This commentary, written by a general pediatrician, is a synthesis of several narrative themes which touch on a range of topics from relapse to long-term sequelae and other issues that effect a growing population of pediatric brain tumor patients. It offers a glimpse into the problems that need to be addressed by health professionals, educators and support teams who provide short and long term care to these patients and their families.
本期《生物伦理学叙事探究》探讨了那些不得不面对小儿脑肿瘤这一毁灭性诊断的家长们的担忧和观点。这篇由一名普通儿科医生撰写的评论文章，综合了几个叙事主题，涉及从复发到长期后遗症等一系列话题，以及影响越来越多小儿脑肿瘤患者群体的其他问题。它让我们得以瞥见健康专业人员、教育工作者以及为这些患者及其家庭提供短期和长期护理的支持团队需要解决的问题。
