Starkbaum Johannes, Gottweis Herbert, Gottweis Ursula, Kleiser Christina, Linseisen Jakob, Meisinger Christa, Kamtsiuris Panagiotis, Moebus Susanne, Jöckel Karl-Heinz, Börm Sonja, Wichmann H-Erich
1 Friedrich Alexander University Erlangen-Nuremberg , Section for Systematic Theology II (Ethics), Nuremberg, Germany .
Biopreserv Biobank. 2014 Apr;12(2):121-30. doi: 10.1089/bio.2013.0071.
Cohort studies and biobank projects have led to public discussions in several European countries in the past. In Germany, many medium-sized studies are currently running successfully in terms of respondent rates. However, EU-wide research on general public perceptions of biobanks and cohort studies have shown that Germany is among those countries where people express the highest reluctance for providing body material and other data for research purposes. Because of early efforts of the just-initiated German National Cohort Study, we are able to begin to investigate in greater detail how various groups of people across Germany reflect and discuss the ongoing implementation of cohort studies and biobanking in Germany. Our research is based on 15 focus group discussions in four German regions, as well as on Eurobarometer poll data on biobanking.
过去，队列研究和生物样本库项目在几个欧洲国家引发了公众讨论。在德国，目前许多中型研究在应答率方面进展顺利。然而，欧盟范围内关于公众对生物样本库和队列研究看法的调查显示，德国是人们最不愿意为研究目的提供身体材料和其他数据的国家之一。由于刚刚启动的德国国家队列研究的早期努力，我们能够更详细地调查德国各地不同人群如何看待和讨论德国队列研究和生物样本库的实施情况。我们的研究基于在德国四个地区进行的15次焦点小组讨论，以及欧洲晴雨表关于生物样本库的民意调查数据。
