Hofmann J, Watzlawik M, Richter-Appelt H
Institute and Polyclinic for Sex Research and Forensic Psychiatry, University Medical Centre Hamburg-Eppendorf, Hamburg.
Institute of Psychology, University of Osnabrück, Osnabrück.
Geburtshilfe Frauenheilkd. 2013 Nov;73(11):1112-1120. doi: 10.1055/s-0033-1350881.
Five women were questioned on their experiences with Kallmann Syndrome (KS) in thematically focused, open interviews. This investigation complements the study of the experiences of men with KS 1. The results show that the consequences and pressures of KS extend beyond the somato-medical field and that those affected are also burdened by mental and psycho-social impacts. The pressures experienced by those affected include a distorted body image resulting from the lack of physical development, which in turn leads to difficulties in developing a healthy feeling of self-worth. Furthermore, particular attention should be paid to the influence of hormone therapy on mood and libido during medical treatment. Some of the affected women reported experiencing depressive moods and low libido, and pressures in their relationship associated with this. The affected women wanted KS to be viewed as a whole in order to achieve better handling. In particular, attentive handling of issues relating to fertility was important to them. Additional relevant support included offers of confidential discussions, and offers of psychotherapy and, where required, sex education or sex therapy.
对五名女性进行了主题聚焦的开放式访谈，询问她们患卡尔曼综合征（KS）的经历。这项调查补充了对男性KS经历的研究1。结果表明，KS的后果和压力超出了躯体医学领域，患者还受到心理和社会心理影响的负担。患者所经历的压力包括因身体发育不足导致的身体形象扭曲，这反过来又导致难以培养健康的自我价值感。此外，在治疗期间应特别关注激素疗法对情绪和性欲的影响。一些受影响的女性报告称经历了抑郁情绪和低性欲，以及与此相关的人际关系压力。受影响的女性希望将KS视为一个整体，以便更好地应对。特别是，认真处理与生育相关的问题对她们很重要。额外的相关支持包括提供保密讨论、心理治疗，以及在需要时提供性教育或性治疗。
