Pellicano Elizabeth, Dinsmore Adam, Charman Tony
Institute of Education, University of London, UK University of Western Australia, Australia
Institute of Education, University of London, UK Wellcome Trust, London, UK.
Autism. 2014 Oct;18(7):756-70. doi: 10.1177/1362361314529627. Epub 2014 Apr 30.
The rise in the measured prevalence of autism has been accompanied by much new research and research investment internationally. This study sought to establish whether the pattern of current UK autism research funding maps on to the concerns of the autism community. Interviews and focus groups were conducted with autistic adults, family members, practitioners and researchers to identify their priorities for research. We also captured the views of a large number of stakeholders via an online survey. There was a clear disparity between the United Kingdom's pattern of funding for autism research and the priorities articulated by the majority of participants. There was general consensus that future priorities for autism research should lie in those areas that make a difference to people's day-to-day lives. There needs to be greater involvement of the autism community both in priority setting and in research more broadly to ensure that resources reach where they are most needed and can make the most impact.
自闭症确诊率的上升在国际上引发了大量新研究和研究投资。本研究旨在确定当前英国自闭症研究资金的分配模式是否与自闭症群体所关注的问题相契合。我们对成年自闭症患者、家庭成员、从业者和研究人员进行了访谈和焦点小组讨论，以确定他们的研究重点。我们还通过在线调查收集了大量利益相关者的意见。英国自闭症研究的资金分配模式与大多数参与者所阐明的优先事项之间存在明显差异。人们普遍认为，自闭症研究未来的重点应放在那些能对人们日常生活产生影响的领域。自闭症群体需要在更广泛的优先事项设定和研究中发挥更大作用，以确保资源能够到达最需要的地方并产生最大影响。
