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英国自闭症诊断:自闭症患者、家长和专业人士的观点。

Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals.

机构信息

Centre for Research in Autism and Education, UCL Institute of Education, University College London, London, WC1H 0NU, UK.

London South Bank University, London, UK.

出版信息

J Autism Dev Disord. 2018 Nov;48(11):3761-3772. doi: 10.1007/s10803-018-3639-1.

Abstract

Accessing an autism diagnosis is a key milestone, both for an individual and their family. Using a qualitative methodology, the current study examined the views and experiences of ten autistic adults, ten parents of children on the autism spectrum, and ten professionals involved in autism diagnosis, all based in the United Kingdom (UK). Interviewing these 30 respondents about the diagnostic process and subsequent support options, the goal was to identify aspects of the diagnostic process that are working well, and areas in which improvements are needed. Using thematic analysis, three key themes were identified: the process of understanding and accepting autism; multiple barriers to satisfaction with the diagnostic process; and inadequate post-diagnostic support provision.

摘要

获得自闭症诊断是一个重要的里程碑,无论是对于个体还是他们的家庭。本研究采用定性方法,对英国的 10 名自闭症成年人、10 名自闭症谱系儿童的家长和 10 名参与自闭症诊断的专业人士的观点和经验进行了调查。通过对这 30 名受访者进行关于诊断过程和后续支持选择的访谈,目的是确定诊断过程中运作良好的方面以及需要改进的领域。通过主题分析,确定了三个关键主题:理解和接受自闭症的过程;对诊断过程满意度的多重障碍;以及诊断后支持提供不足。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e21f/6182717/34a8af46bcb9/10803_2018_3639_Fig1_HTML.jpg

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