Sinnott K A, Dunn J A, Rothwell A G, Hall A S, Post M W M
1] Department of Orthopaedic Surgery and Musculoskeletal Medicine, University of Otago, Christchurch, New Zealand [2] Burwood Academy of Independent Living (BAIL), Christchurch, New Zealand [3] Burwood Spinal Unit, Canterbury District Health Board, Christchurch, New Zealand.
1] Department of Orthopaedic Surgery and Musculoskeletal Medicine, University of Otago, Christchurch, New Zealand [2] Burwood Spinal Unit, Canterbury District Health Board, Christchurch, New Zealand.
Spinal Cord. 2014 Aug;52(8):611-5. doi: 10.1038/sc.2014.57. Epub 2014 May 6.
Implementation study.
To describe the development and potential value of the New Zealand (NZ) upper limb surgery registry and report the demographic and spinal cord injury characteristics of individuals with tetraplegia collated to date.
Multi Center-coordinated from Burwood Spinal Unit, NZ.
Following discussions with eight international units, clinical information and outcomes measures were agreed upon for use in this specific population. To implement this consensus, a web-based upper limb surgery registry was developed in NZ. Inclusion criteria included referral to a hand clinic for clinical assessment for suitability for tendon transfer surgery. Clinical data were collected regardless of acceptance of surgery thereby creating a self-selected control group. Twenty-eight years of retrospective NZ data was entered into the registry, as well as 3 years of prospective data collected in NZ.
From 1982 to 2013, a total of 357 persons with tetraplegia were assessed as suitable for surgery. Of those, 223 individuals underwent surgery and 134 declined the intervention(s). The prospective group currently comprises 55 assessments with 23 surgery individuals and 32 who have declined surgery to date.
Clinical information is now available within a web-based registry for all individuals reviewed in hand clinics from when upper limb surgery was first introduced. A broad range of outcomes of interest can easily be reported directly from the registry. The self-selected control group will allow comparative studies to be explicitly linked to the specific interventions of interest.
实施性研究。
描述新西兰上肢手术登记处的发展及潜在价值，并报告截至目前整理的四肢瘫痪患者的人口统计学特征和脊髓损伤特征。
由新西兰伯伍德脊髓病治疗中心进行多中心协调。
在与八个国际机构进行讨论后，就用于这一特定人群的临床信息和结果指标达成一致。为落实这一共识，新西兰开发了一个基于网络的上肢手术登记处。纳入标准包括被转介至手部诊所进行肌腱转移手术适用性的临床评估。无论是否接受手术，均收集临床数据，从而形成一个自我选择的对照组。将新西兰28年的回顾性数据录入登记处，同时录入在新西兰收集的3年前瞻性数据。
1982年至2013年，共有357例四肢瘫痪患者被评估为适合手术。其中，223例接受了手术，134例拒绝了干预措施。前瞻性队列目前包括55例评估，其中23例接受了手术，32例至今拒绝手术。
自首次引入上肢手术以来，手部诊所诊治的所有患者的临床信息现已可在基于网络的登记处获取。可以直接从登记处轻松报告一系列广泛的相关结果。自我选择的对照组将使比较研究能够明确地与感兴趣的特定干预措施相关联。
