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我孙女的遭遇:晚期流产的悲剧。

My daughter's daughter: the tragedy of late stage miscarriage.

作者信息

Hughes Tara

出版信息

Pract Midwife. 2014 Apr;17(4):9-11.

Abstract

This article sets out my observations of my daughter's difficult pregnancy and late-stage miscarriage. I share this information to raise awareness that the specialist support for women going through this is not always in place and doesn't fully prepare women for this experience. Even though this can be uncomfortable for maternity professionals, the care that women receive, especially during labour and birth, has a massive impact on them and their families. There are many opportunities for midwives to make a positive difference at this difficult time. My granddaughter, Jess, died at five months gestation and was later confirmed to have Turner Syndrome. Turner Syndrome is a chromosomal abnormality that only affects girls and is related to the partial or complete deletion of the X chromosome. Not all affected girls are miscarried and an estimated one in 2000 girls born in the UK has Turner Syndrome.

摘要

本文阐述了我对女儿艰难孕期及晚期流产的观察。我分享这些信息是为了提高人们的认识,即对于经历这种情况的女性,专业支持并非总是到位,也没有让女性充分为这种经历做好准备。尽管这对产科专业人员来说可能令人不适,但女性所接受的护理,尤其是在分娩期间,对她们及其家庭有着巨大影响。在这个艰难时刻,助产士有很多机会带来积极改变。我的孙女杰斯在妊娠五个月时夭折,后来被确诊患有特纳综合征。特纳综合征是一种染色体异常疾病,仅影响女孩,与X染色体的部分或完全缺失有关。并非所有受影响的女孩都会流产,据估计,在英国每2000名出生的女孩中就有一名患有特纳综合征。

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