Ethox Centre, Nuffield Department of Population Health, University of Oxford, UK; Uehiro Centre for Practical Ethics, University of Oxford, UK.
Soc Sci Med. 2014 Jul;113:34-41. doi: 10.1016/j.socscimed.2014.04.043. Epub 2014 May 2.
In recent years, liberal democratic societies have struggled with the question of how best to balance expertise and democratic participation in the regulation of emerging technologies. This study aims to explain how national deliberative ethics committees handle the practical tension between scientific expertise, ethical expertise, expert patient input, and lay public input by explaining two institutions' processes for determining the legitimacy or illegitimacy of reasons in public policy decision-making: that of the United Kingdom's Human Fertilisation and Embryology Authority (HFEA) and the United States' American Society for Reproductive Medicine (ASRM). The articulation of these 'methods of legitimation' draws on 13 in-depth interviews with HFEA and ASRM members and staff conducted in January and February 2012 in London and over Skype, as well as observation of an HFEA deliberation. This study finds that these two institutions employ different methods in rendering certain arguments legitimate and others illegitimate: while the HFEA attempts to 'balance' competing reasons but ultimately legitimizes arguments based on health and welfare concerns, the ASRM seeks to 'filter' out arguments that challenge reproductive autonomy. The notably different structures and missions of each institution may explain these divergent approaches, as may what Sheila Jasanoff (2005) terms the distinctive 'civic epistemologies' of the US and the UK. Significantly for policy makers designing such deliberative committees, each method differs substantially from that explicitly or implicitly endorsed by the institution.
近年来,自由民主社会一直在努力寻找最佳方法,以平衡新兴技术监管中的专业知识和民主参与。本研究旨在通过解释两个机构在公共政策决策中确定理由合法性或非法性的过程,来解释国家审议伦理委员会如何处理科学专业知识、伦理专业知识、专家患者意见和普通公众意见之间的实际紧张关系:英国人类受精与胚胎管理局(HFEA)和美国生殖医学学会(ASRM)。这些“合法化方法”的阐明借鉴了 2012 年 1 月至 2 月在伦敦和 Skype 上对 HFEA 和 ASRM 成员和工作人员进行的 13 次深入访谈,以及对 HFEA 审议的观察。本研究发现,这两个机构采用不同的方法使某些论点合法化,而使其他论点非法化:HFEA 试图“平衡”相互竞争的理由,但最终使基于健康和福利问题的论点合法化,而 ASRM 则试图“过滤”掉挑战生殖自主权的论点。每个机构的显著不同的结构和使命可能解释了这些不同的方法,就像希拉·贾萨诺夫(Sheila Jasanoff)(2005 年)所说的英美两国的独特“公民认识论”一样。对于设计此类审议委员会的政策制定者来说,每种方法都与机构明确或隐含支持的方法有很大不同。