Peninsula Cerebra Research Unit (PenCRU) & NIHR PenCLAHRC, University of Exeter Medical School, Exeter, UK.
Nottingham University Hospitals NHS Trust, Nottingham, UK.
Arch Dis Child. 2014 Oct;99(10):927-32. doi: 10.1136/archdischild-2013-305803. Epub 2014 May 22.
To identify what aspects of health clinicians target when working with children with neurodisability, and which might be appropriate to assess the performance of health services.
Health professionals were recruited through child development teams and professional societies in England. Professionals participated in four rounds of an online Delphi survey. Open questions were used to elicit aspects of health; these were coded using the WHO International Classification of Functioning, Disability and Health for Children and Youth. Then, participants were asked to rate their agreement with statements to prioritise outcomes identified.
Responses to all four rounds were, respectively: 233/276 (84.4%), 232/286 (81.1%), 227/285 (79.6%) and 191/284 (67.3%). The key outcome domains identified were: mental health, confidence/emotional stability, anxiety/attention, sleep, pain, toileting, movement ability, manual ability, acquiring skills, communication, mobility, self-care, recreation and leisure. Participants rated both functioning and well-being in these aspects of health as equally important.
This Delphi survey identified nine key domains that provide a professional perspective on a core set of outcomes for evaluating services for children and young people with neurodisability.
确定临床医生在与神经残疾儿童合作时针对哪些健康方面进行治疗，以及评估卫生服务绩效时哪些方面可能是合适的。
通过英国儿童发展团队和专业协会招募卫生专业人员。专业人员参加了四轮在线德尔菲调查。采用开放式问题来引出健康方面的内容；这些内容使用世界卫生组织《国际功能、残疾和健康分类儿童和青年版》进行编码。然后，要求参与者对确定的优先结果的陈述进行评分。
四轮调查的回复率分别为：233/276（84.4%）、232/286（81.1%）、227/285（79.6%）和 191/284（67.3%）。确定的主要结果领域包括：心理健康、信心/情绪稳定、焦虑/注意力、睡眠、疼痛、如厕、运动能力、手动能力、技能获取、沟通、移动能力、自我护理、娱乐和休闲。参与者认为这些健康方面的功能和幸福感同样重要。
这项德尔菲调查确定了九个关键领域，为评估神经残疾儿童和年轻人服务的核心结果集提供了专业视角。
