多发性硬化症患者的妊娠情况：一项问卷调查研究。
Pregnancy in multiple sclerosis: a questionnaire study.
作者信息
Borisow Nadja, Paul Friedemann, Ohlraun Stephanie, Pach Daniel, Fischer Felix, Dörr Jan
机构信息
NeuroCure Clinical Research Center, Charité - Universitätsmedizin Berlin, Berlin, Germany; Clinical and Experimental Multiple Sclerosis Research Center, Department of Neurology, Charité - Universitätsmedizin Berlin, Berlin, Germany.
NeuroCure Clinical Research Center, Charité - Universitätsmedizin Berlin, Berlin, Germany.
出版信息
PLoS One. 2014 Jun 5;9(6):e99106. doi: 10.1371/journal.pone.0099106. eCollection 2014.
BACKGROUND
Multiple sclerosis (MS) preferentially affects females at childbearing age. For this reason patients and treating physicians were frequently confronted with questions concerning family planning, pregnancy and birth.
OBJECTIVE
The aim of this study was to evaluate the expertise about pregnancy related topics in multiple sclerosis of neurologists in private practice.
METHODS
We developed a survey with 16 multiple choice questions about pregnancy related topics and sent it to neurologists in private practice in Berlin, Germany.
RESULTS
56 completed questionnaires were sent back. 54% of all questions were answered correctly, 21% of the questions were answered with "I don't know". Correct answers were more often given by physicians who treat more than 400 MS patients per year (p = 0.001). Further positive associations were found for assumed relevance of the topic (p = 0.002) and the degree of counseling (p<0.001).
CONCLUSION
To provide a comprehensive counseling, MS patients with desire for children should be counseled by physicians with a lot of experience in MS treatment.
背景
多发性硬化症（MS）在育龄女性中更为常见。因此，患者和治疗医生经常面临有关计划生育、怀孕和分娩的问题。
目的
本研究旨在评估私人执业神经科医生在多发性硬化症妊娠相关主题方面的专业知识。
方法
我们设计了一项包含16个关于妊娠相关主题的选择题的调查问卷，并将其发送给德国柏林的私人执业神经科医生。
结果
共收回56份完整问卷。所有问题的正确率为54%，21%的问题回答为“我不知道”。每年治疗超过400例MS患者的医生给出正确答案的比例更高（p = 0.001）。在对该主题的假定相关性（p = 0.002）和咨询程度（p<0.001）方面还发现了进一步的正相关关系。
结论
为了提供全面的咨询，有生育意愿的MS患者应由在MS治疗方面经验丰富的医生进行咨询。
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