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8000 例欧洲患者的哮喘控制和管理:识别哮喘并将症状和体验联系起来(REALISE)调查。

Asthma control and management in 8,000 European patients: the REcognise Asthma and LInk to Symptoms and Experience (REALISE) survey.

机构信息

Centre of Academic Primary Care, University of Aberdeen, Aberdeen, UK.

Education for Health, Warwick, UK.

出版信息

NPJ Prim Care Respir Med. 2014 Jun 12;24:14009. doi: 10.1038/npjpcrm.2014.9.

Abstract

BACKGROUND

Asthma is one of the most common chronic diseases in the world, and previous studies have reported low levels of control. Recent developments in the availability and use of online sources of information about asthma might add to patients' knowledge and help improve control.

AIMS

To investigate whether asthma control has improved by assessing levels of symptoms, exacerbations and Global Initiative for Asthma-defined control in a real-life population of patients who use the Internet and social media, as well as evaluate patient perception of control and attitudes to asthma.

METHODS

Online surveys were conducted among 8,000 patients with asthma (aged 18-50 years, ≥2 prescriptions in the previous 2 years, use of social media) from 11 European countries.

RESULTS

Levels of asthma control were low: 45% of respondents had uncontrolled asthma. Acute exacerbations were common: 44% of respondents reported having used oral steroids for asthma in the previous 12 months, 24% had visited an emergency department and 12% had been hospitalised. More than 80% of respondents (overall, and among those with a history of exacerbations) considered their asthma to be controlled. Of those who had an exacerbation requiring oral steroids, 75% regarded their asthma as not serious.

CONCLUSIONS

Asthma control in Europe remains poor; symptoms and exacerbations are common. Many patients regard their asthma as controlled and not serious despite experiencing symptoms and exacerbations. There is a need to assess patients' control, risk and inhaler technique, and to ensure that patients are prescribed, and take, appropriate treatments.

摘要

背景

哮喘是世界上最常见的慢性疾病之一,先前的研究报告显示其控制水平较低。最近,关于哮喘的在线信息资源的可用性和使用情况有所发展,这可能会增加患者的知识,并有助于改善控制水平。

目的

通过评估症状、加重和全球哮喘倡议定义的控制水平,调查在使用互联网和社交媒体的现实生活中的哮喘患者群体中,哮喘控制是否有所改善,并评估患者对控制的感知和对哮喘的态度。

方法

在 11 个欧洲国家中,对 8000 名年龄在 18-50 岁之间、过去 2 年内有 2 次以上处方、使用社交媒体的哮喘患者进行了在线调查。

结果

哮喘控制水平较低:45%的受访者患有未控制的哮喘。急性加重较为常见:44%的受访者报告在过去 12 个月内因哮喘使用过口服类固醇,24%曾去过急诊室,12%曾住院。超过 80%的受访者(总体而言,以及有加重史的受访者)认为他们的哮喘得到了控制。在需要口服类固醇治疗的加重患者中,75%认为他们的哮喘并不严重。

结论

欧洲的哮喘控制仍然较差;症状和加重较为常见。尽管有症状和加重,许多患者仍认为他们的哮喘得到了控制,且并不严重。需要评估患者的控制、风险和吸入器技术,并确保患者获得并使用适当的治疗方法。

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