Partridge Martyn R, Dal Negro Roberto W, Olivieri Dario
Faculty Education Office (Medicine), Imperial College, London, UK.
Prim Care Respir J. 2011 Sep;20(3):315-23, 17 p following 323. doi: 10.4104/pcrj.2011.00056.
To understand the needs of people with asthma and COPD, and to identify opportunities for improved care.
Quantitative questionnaire-based survey performed in five European countries on patients with asthma and COPD. Questionnaires were administered to patients using Computer Assisted Web Interview methodology.
1022 patients with asthma (UK [n=190]; Germany [n=214]; France [n=200]; Italy [n=222]; Spain [n=196]) and 719 patients with COPD (UK [n=153]; Germany [n=147]; France [n=145]; Italy [n=140]; Spain [n=134]) were enrolled in the study. 32% of those with asthma and 67% of those with COPD considered that their condition had a significant effect on their quality of life, and stigma and emotional distress was common. Many expressed concern regarding potential medication side effects or that medicines might lose their effect with time. Major discrepancies between expectations and patient satisfaction with the doctor-patient relationship were observed, including a need to be consulted in the choice of inhalers. Consultations were infrequent, and 75% of respondents sought additional information beyond that received during consultations - commonly from the internet.
Patient satisfaction was high but information needs were not addressed and the emotional burden of disease is underappreciated.
了解哮喘和慢性阻塞性肺疾病(COPD)患者的需求,并确定改善护理的机会。
在五个欧洲国家对哮喘和COPD患者进行基于问卷调查的定量研究。采用计算机辅助网络访谈方法对患者进行问卷调查。
1022例哮喘患者(英国[n = 190];德国[n = 214];法国[n = 200];意大利[n = 222];西班牙[n = 196])和719例COPD患者(英国[n = 153];德国[n = 147];法国[n = 145];意大利[n = 140];西班牙[n = 134])纳入研究。32%的哮喘患者和67%的COPD患者认为他们的病情对其生活质量有重大影响,耻辱感和情绪困扰很常见。许多人对潜在的药物副作用或药物可能随时间失去疗效表示担忧。观察到患者对医患关系的期望与满意度之间存在重大差异,包括在吸入器选择上需要得到咨询。会诊不频繁,75%的受访者寻求会诊期间未获得的额外信息,通常来自互联网。
患者满意度较高,但信息需求未得到满足,疾病的情感负担未得到充分认识。