Uncovered needs in the management of inherited bleeding disorders in Italy.
作者信息
Arcieri Romano, Molinari Angelo C, Farace Stefania, Mazza Giuseppe, Garnero Alberto, Calizzani Gabriele, Giordano Paola, Oliovecchio Emily, Mantovani Lorenzo, Manzoli Lamberto, Giangrande Paul
机构信息
Italian Federation of Haemophilia Societies (FedEmo), Rome, Italy.
FedEmo Scientific Commettee, Rome, Italy Thrombosis and Hemostasis Unit, Giannina Gaslini Children's Hospital, Genoa, Italy.
出版信息
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s563-6. doi: 10.2450/2014.0036-14s.
Abstract
摘要
相似文献
1
Uncovered needs in the management of inherited bleeding disorders in Italy.意大利遗传性出血性疾病管理中未被满足的需求。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s563-6. doi: 10.2450/2014.0036-14s.
2
Emerging therapies for hemophilia: a new era of care and the role of the interdisciplinary team.血友病的新兴疗法：护理新时代与跨学科团队的作用
Semin Thromb Hemost. 2014 Oct;40(7):790-802. doi: 10.1055/s-0034-1384636. Epub 2014 Aug 21.
3
Current and evolving features in the clinical management of haemophilia.血友病临床管理中的当前及不断演变的特征
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s554-62. doi: 10.2450/2014.0043-14s.
4
The haemophilia certification system in Canada.加拿大的血友病认证系统。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):e531-41. doi: 10.2450/2014.0032-14s.
5
Hemophilia comprehensive care model waiting to be duplicated for other rare chronic conditions.血友病综合护理模式有待在其他罕见慢性病中推广应用。
Transfus Apher Sci. 2013 Apr;48(2):119-21. doi: 10.1016/j.transci.2013.02.036.
6
Enhancing haemophilia care through registries.通过登记处加强血友病护理。
Haemophilia. 2014 May;20 Suppl 4:121-9. doi: 10.1111/hae.12406.
7
Haemophilia Centre Certification Systems: optional or optimal choice for healthcare systems?血友病中心认证系统：医疗系统的可选还是最佳选择？
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s492-4. doi: 10.2450/2014.0076-14s.
8
New centre to revolutionise cardiac care in Africa.
Cardiovasc J Afr. 2014 Nov-Dec;25(6):303-4.
9
Second East Mediterranean Hemophilia Network Forum (HEMNET II): Needs and challenges to sustain and improve care delivery to the inherited bleeding disorders community.
Haemophilia. 2020 Apr;26 Suppl 3:3. doi: 10.1111/hae.13952.
10
A niche business. More hospitals focusing on limited service lines.
Mod Healthc. 2013 May 27;43(21):30-1.
引用本文的文献
1
The risk of venipuncture in newborn with severe hemophilia: Case report of a large elbow hemorrhage and literature review of compartment syndrome.严重血友病新生儿静脉穿刺的风险：一例肘部大出血病例报告及骨筋膜室综合征文献综述
Hematol Rep. 2021 Jun 9;13(2):8967. doi: 10.4081/hr.2021.8967.
2
Oral anticoagulation in very elderly patients with atrial fibrillation: Results from the prospective multicenter START2-REGISTER study.高龄房颤患者的口服抗凝治疗：来自前瞻性多中心 START2-REGISTER 研究的结果。
PLoS One. 2019 May 23;14(5):e0216831. doi: 10.1371/journal.pone.0216831. eCollection 2019.
3
Definition of an organisational model for the prevention and reduction of health and social impacts of inherited bleeding disorders.预防和减少遗传性出血性疾病对健康和社会影响的组织模式定义。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s582-8. doi: 10.2450/2014.0087-14s.
4
The Italian institutional accreditation model for Haemophilia Centres.意大利血友病中心的机构认证模式。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s510-4. doi: 10.2450/2014.0058-14s.
5
Haemophilia Centre Certification Systems: optional or optimal choice for healthcare systems?血友病中心认证系统：医疗系统的可选还是最佳选择？
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s492-4. doi: 10.2450/2014.0076-14s.
本文引用的文献
1
Current status of Italian Registries on inherited bleeding disorders.意大利遗传性出血性疾病登记处的现状。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s576-81. doi: 10.2450/2014.0017-14s.
2
The European Haemophilia Network (EUHANET).欧洲血友病网络（EUHANET）。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s515-8. doi: 10.2450/2014.0008-14s.
3
The Italian institutional accreditation model for Haemophilia Centres.意大利血友病中心的机构认证模式。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s510-4. doi: 10.2450/2014.0058-14s.
4
The demand for factor VIII and for factor IX and the toll fractionation product surplus management.对凝血因子 VIII、凝血因子 IX 的需求以及凝血因子浓缩物产品过剩管理。
Blood Transfus. 2013 Sep;11 Suppl 4(Suppl 4):s64-76. doi: 10.2450/2013.011s.
5
Clinical use and the Italian demand for activated prothrombin complex and activated recombinant factor VII concentrates.凝血酶原复合物浓缩剂和重组活化凝血因子VII浓缩剂的临床应用及意大利市场需求
Blood Transfus. 2013 Sep;11 Suppl 4(Suppl 4):s101-9. doi: 10.2450/2013.016s.
6
Emerging issues on comprehensive hemophilia care: preventing, identifying, and monitoring age-related comorbidities.综合性血友病护理中的新问题：预防、识别和监测与年龄相关的合并症。
Semin Thromb Hemost. 2013 Oct;39(7):794-802. doi: 10.1055/s-0033-1354424. Epub 2013 Sep 8.
7
Models for institutional and professional accreditation of haemophilia centres in Italy.意大利血友病治疗中心的机构和专业认证模式。
Haemophilia. 2013 Jul;19(4):e248-55. doi: 10.1111/hae.12141. Epub 2013 Apr 5.
8
Randomized, controlled, parallel-group trial of routine prophylaxis vs. on-demand treatment with sucrose-formulated recombinant factor VIII in adults with severe hemophilia A (SPINART).随机、对照、平行分组试验：在重度 A 型血友病成人中常规预防与按需使用蔗糖配方重组因子 VIII 的治疗（SPINART）。
J Thromb Haemost. 2013 Jun;11(6):1119-27. doi: 10.1111/jth.12202.
9
Guidelines for the management of hemophilia.血友病管理指南。
Haemophilia. 2013 Jan;19(1):e1-47. doi: 10.1111/j.1365-2516.2012.02909.x. Epub 2012 Jul 6.
10
Haemophilia care in Europe: the ESCHQoL study.欧洲血友病护理：ESCHQoL 研究。
Haemophilia. 2012 Sep;18(5):729-37. doi: 10.1111/j.1365-2516.2012.02847.x. Epub 2012 May 29.
Zotero 插件