• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

Current status of Italian Registries on inherited bleeding disorders.

作者信息

Hassan Hamisa Jane, Morfini Massimo, Taruscio Domenica, Abbonizio Francesca, Giampaolo Adele, Kodra Yllka, Oliovecchio Emily, Vittozzi Luciano

机构信息

Section of Transfusion Methodologies, Department of Haematology, Oncology and Molecular Medicine, Italian National Institute of Health, Rome, Italy.

Italian Association of Haemophilia Centres (AICE), Florence, Italy.

出版信息

Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s576-81. doi: 10.2450/2014.0017-14s.

DOI:10.2450/2014.0017-14s
PMID:24922298
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4044803/
Abstract
摘要

相似文献

1
Current status of Italian Registries on inherited bleeding disorders.意大利遗传性出血性疾病登记处的现状。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s576-81. doi: 10.2450/2014.0017-14s.
2
Inherited bleeding disorders: results from the Italian Regional Haemophilia Centre of Pescara.遗传性出血性疾病:佩斯卡拉意大利地区血友病中心的研究结果。
Blood Transfus. 2008 Jul;6(3):136-42. doi: 10.2450/2008.0050-07.
3
Spectrum of inherited bleeding disorders in southern Iran, before and after the establishment of comprehensive coagulation laboratory.伊朗南部综合凝血实验室建立前后遗传性出血性疾病的谱状情况
Blood Coagul Fibrinolysis. 2009 Dec;20(8):642-5. doi: 10.1097/MBC.0b013e32832f4371.
4
Complication rates of central venous access devices in patients with inherited bleeding disorders in Australia.
Br J Haematol. 2019 Aug;186(4):e86-e88. doi: 10.1111/bjh.15914. Epub 2019 Apr 2.
5
Italian Registry of Haemophilia and Allied Disorders. Objectives, methodology and data analysis.意大利血友病及相关疾病注册机构。目标、方法与数据分析。
Haemophilia. 2008 May;14(3):444-53. doi: 10.1111/j.1365-2516.2008.01679.x. Epub 2008 Mar 18.
6
Inherited bleeding disorders in Afghanistan: The current situation amid COVID-19.阿富汗的遗传性出血性疾病:新冠疫情下的现状
Haemophilia. 2021 Jul;27(4):e579-e580. doi: 10.1111/hae.14332. Epub 2021 May 9.
7
Addressing the impact of SARS-CoV-2 infection in persons with congenital bleeding disorders: The Italian MECCOVID-19 study.评估严重急性呼吸综合征冠状病毒2(SARS-CoV-2)感染对先天性出血性疾病患者的影响:意大利MECCOVID-19研究。
Haemophilia. 2021 Jul;27(4):e575-e578. doi: 10.1111/hae.14331. Epub 2021 May 13.
8
Clinical audit of inherited bleeding disorders in a developing country.发展中国家遗传性出血性疾病的临床审计
Indian J Pathol Microbiol. 2010 Jan-Mar;53(1):50-3. doi: 10.4103/0377-4929.59183.
9
Enhancing haemophilia care through registries.通过登记处加强血友病护理。
Haemophilia. 2014 May;20 Suppl 4:121-9. doi: 10.1111/hae.12406.
10
Registry of inherited bleeding disorders in Poland--current status and potential role of the HemoRec database.波兰遗传性出血性疾病登记处——HemoRec 数据库的现状和潜在作用。
Haemophilia. 2011 Jan;17(1):e189-95. doi: 10.1111/j.1365-2516.2010.02371.x.

引用本文的文献

1
International Comparison of Thalassemia Registries: Challenges and Opportunities.地中海贫血登记处的国际比较:挑战与机遇
Acta Inform Med. 2019 Mar;27(1):58-63. doi: 10.5455/aim.2019.27.58-63.
2
Rare congenital bleeding disorders.罕见的先天性出血性疾病。
Ann Transl Med. 2018 Sep;6(17):331. doi: 10.21037/atm.2018.08.34.
3
Inherited Bleeding Disorders-Experience of a Not-for-Profit Organization in Pakistan.遗传性出血性疾病——巴基斯坦一家非营利组织的经验
Clin Appl Thromb Hemost. 2018 Nov;24(8):1241-1248. doi: 10.1177/1076029618781033. Epub 2018 Jun 12.
4
Evaluation of a web-based registry of inherited bleeding disorders: a descriptive study of the Brazilian experience with HEMOVIDAweb Coagulopatias.基于网络的遗传性出血性疾病登记系统评估:对巴西HEMOVIDAweb凝血障碍项目经验的描述性研究
Orphanet J Rare Dis. 2017 Feb 10;12(1):27. doi: 10.1186/s13023-016-0560-6.
5
The Italian National Centre for Rare Diseases: where research and public health translate into action.意大利国家罕见病研究中心:科研与公共卫生转化为实际行动之地。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s591-605. doi: 10.2450/2014.0040-14s.
6
Definition of an organisational model for the prevention and reduction of health and social impacts of inherited bleeding disorders.预防和减少遗传性出血性疾病对健康和社会影响的组织模式定义。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s582-8. doi: 10.2450/2014.0087-14s.
7
Uncovered needs in the management of inherited bleeding disorders in Italy.意大利遗传性出血性疾病管理中未被满足的需求。
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s563-6. doi: 10.2450/2014.0036-14s.
8
Haemophilia Centre Certification Systems: optional or optimal choice for healthcare systems?血友病中心认证系统:医疗系统的可选还是最佳选择?
Blood Transfus. 2014 Apr;12 Suppl 3(Suppl 3):s492-4. doi: 10.2450/2014.0076-14s.

本文引用的文献

1
Hemophilia A in the third millennium.血友病 A 在第三个千年。
Blood Rev. 2013 Jul;27(4):179-84. doi: 10.1016/j.blre.2013.06.002. Epub 2013 Jun 28.
2
Principles of care for the diagnosis and treatment of von Willebrand disease.血管性血友病诊断与治疗护理原则。
Haematologica. 2013 May;98(5):667-74. doi: 10.3324/haematol.2012.077263.
3
Cancers in patients with hemophilia: a retrospective study from the Italian Association of Hemophilia Centers.血友病患者的癌症:来自意大利血友病中心协会的回顾性研究。
J Thromb Haemost. 2012 Jan;10(1):90-5. doi: 10.1111/j.1538-7836.2011.04566.x.
4
Treatment of haemophilia: building on strength in the third millennium.血友病的治疗:在第三个千年中巩固优势。
Haemophilia. 2011 Nov;17 Suppl 3:1-24. doi: 10.1111/j.1365-2516.2011.02657.x.
5
Consumption of clotting factors in severe haemophilia patients undergoing prophylaxis and on-demand treatment in Italy.
Transfus Med. 2011 Aug;21(4):280-4. doi: 10.1111/j.1365-3148.2011.01074.x. Epub 2011 Mar 30.
6
Replacement therapy with recombinant factor IX. A multicentre evaluation of current dosing practices in Italy.重组因子 IX 的替代治疗。意大利多中心当前剂量实践评估。
Blood Transfus. 2011 Jan;9(1):60-9. doi: 10.2450/2010.0011-10. Epub 2010 Apr 30.
7
Mortality and causes of death in Italian persons with haemophilia, 1990-2007.意大利血友病患者 1990-2007 年的死亡率和死因。
Haemophilia. 2010 May;16(3):437-46. doi: 10.1111/j.1365-2516.2009.02188.x. Epub 2010 Feb 9.
8
Comparison of the rates of joint arthroplasty in patients with severe factor VIII and IX deficiency: an index of different clinical severity of the 2 coagulation disorders.重度凝血因子VIII和IX缺乏患者关节置换术发生率的比较:两种凝血障碍不同临床严重程度的一个指标。
Blood. 2009 Jul 23;114(4):779-84. doi: 10.1182/blood-2009-01-195313. Epub 2009 Apr 8.
9
Italian Registry of Haemophilia and Allied Disorders. Objectives, methodology and data analysis.意大利血友病及相关疾病注册机构。目标、方法与数据分析。
Haemophilia. 2008 May;14(3):444-53. doi: 10.1111/j.1365-2516.2008.01679.x. Epub 2008 Mar 18.
10
Comprehensive care for haemophilia around the world.全球血友病综合关怀。
Haemophilia. 2004 Oct;10 Suppl 4:9-13. doi: 10.1111/j.1365-2516.2004.01010.x.