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一项包含重要护理环节的妊娠滋养细胞疾病专科服务的发展历程:英国谢菲尔德的经验

Evolution of a specialist gestational trophoblastic disease service with a major nursing component: the Sheffield, United Kingdom, experience.

作者信息

Ireson Jane, Singh Kamaljit, Gillett Sarah, Hills Annie, Everard Jan, Winter Matthew, Coleman Robert E, Tidy John, Hancock Barry W

出版信息

J Reprod Med. 2014 May-Jun;59(5-6):195-8.

PMID:24937956
Abstract

OBJECTIVE

To describe the evolution of a highly regarded and unique model of multidisciplinary care providing support, monitoring, and treatment for all gestational trophoblastic disease (GTD) patients referred to Sheffield Trophoblastic Disease Centre, 1 of the 3 United Kingdom (UK) supraregional GTD centers.

BACKGROUND

The UK GTD service was first established in 1973 and since its inception has centralized care for GTD patients and played a leading international role in developing therapies, management protocols, and biomarker assays with good outcomes for patients. The service preceded recent trends towards centralization for rare cancers in the U.K. In Sheffield the GTD team has evolved to become a true multidisciplinary team with a strong nursing component, which is set to expand in the future.

RESULTS

Centralization of care for GTD in the U.K. has been directly associated with the impressive results the service has achieved, with high cure rates (98-100%) and low (5-8%) chemotherapy rates. The addition of GTD nurse specialists has been beneficial to patients as they provide a communication link between patients and their clinicians and ensure that information, support, and advice is available for all GTD patients, both in hospital and at home.

CONCLUSION

The UK GTD service is an internationally renowned, multidisciplinary organization. The service achieves impressive clinical results and now features a strong nursing component. The addition of nurse specialists has enabled the team to offer both clinical and psychological care and means that specialist advice is available for patients and healthcare professionals involved in giving care to this patient group.

摘要

目的

描述一种备受推崇且独特的多学科护理模式的发展历程,该模式为转诊至英国三个超区域滋养细胞疾病中心之一——谢菲尔德滋养细胞疾病中心的所有妊娠滋养细胞疾病(GTD)患者提供支持、监测和治疗。

背景

英国的GTD服务于1973年首次设立,自成立以来一直对GTD患者进行集中护理,并在开发治疗方法、管理方案和生物标志物检测方面发挥了国际领先作用,为患者带来了良好的治疗效果。该服务早于英国近期针对罕见癌症的集中化趋势。在谢菲尔德,GTD团队已发展成为一个真正的多学科团队,护理力量强大,且未来还将扩大。

结果

英国对GTD护理的集中化与该服务取得的令人瞩目的成果直接相关,治愈率高(98 - 100%),化疗率低(5 - 8%)。增加GTD护士专家对患者有益,因为他们在患者及其临床医生之间建立了沟通桥梁,确保所有GTD患者在医院和家中都能获得信息、支持和建议。

结论

英国的GTD服务是一个国际知名的多学科组织。该服务取得了令人瞩目的临床成果,目前护理力量强大。护士专家的加入使团队能够提供临床和心理护理,意味着可为参与护理该患者群体的患者和医护人员提供专业建议。

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引用本文的文献

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Mental Representations of Illness in Patients with Gestational Trophoblastic Disease: How Do Patients Perceive Their Condition?妊娠滋养细胞疾病患者对疾病的心理表征:患者如何看待自己的病情?
PLoS One. 2016 Apr 21;11(4):e0153869. doi: 10.1371/journal.pone.0153869. eCollection 2016.